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Oculopharyngeal muscular dystrophy
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Oculopharyngeal muscular dystrophy
Advice
Advice of Oculopharyngeal muscular dystrophy
Acceptance
by John Quesnel
Physically Therapy
by Charlene VanSlyke
Stay active
by Lisa
FAITH!
by Philip White
Lots of exercise
by Kari
Gabapentin
by Bstings
Joining a Facebook Group where I can chat with other caregivers
by Sue
Not getting stressed
by Monica
This website. It feels good to know I am not alone. I did not know my difficulty climbing stairs was attributed to OPMD.
by Kat
My volunteer work keeps me going because others rely on me, I have to push myself.
by Robert
Excepted disease live day by day and stay positive
by Llauren
mild exercise-including water aerobics
by twhelan3
Having doctors that trust, believe and respect me.
by Jen
Chin dip and to the left has helps swallowing
by Nancy
God looks after me
by Glenn
Accepté ma maladie
by Odette
understanding my condition
by Richard A.
Surgery to correct eyes that were crossing
by JoaK
Positive attitude
by Wendy
Eye surgery
by Noel
Positivity
by John Quesnel
Changes in life style, retired
by Charlene VanSlyke
Rest often
by Lisa
Taking vitamin D
by Kari
Ptosis Surgery
by Bstings
Taking part in a regular exercise routine and swimming
by Sue
Think always positive
by Monica
Even though frustrating when people can't understand, its kind of nice to blend with the general public with my dark glasses and choosing the elevator occasionally instead of the stairs.
by Kat
Keeping up to date on things and connecting on forums and facebook for OPMD specific topic.
by Robert
I like the and CBS oil
by Llauren
Be sure and see doctor if any indication of pneumonia or lung related issues.
by twhelan3
The emotional and way too often physical support I receive from my family and friends.
by Jen
Flus and other viruses causes huge setbacks
by Nancy
my family are my inspiration
by Glenn
Partager information dans le forum
by Odette
My Family
by Richard A.
Watching what foods I eat
by JoaK
Family support
by Wendy
Bike
by Noel
Confidence
by John Quesnel
Changes in diet
by Charlene VanSlyke
Don't overdo it
by Lisa
Talking to others who are affected
by Kari
Cane
by Bstings
Moving to the beach where there is less stress and an apartment more suited to our physical abilities
by Sue
Have hope in having a cure very soon
by Monica
Talking about "it" with family and friends.
by Kat
Swallow therapy, some physical therapy, staying up and active as much as possible. My ptosis crutch glasses.
by Robert
I've excepted my limitations
by Llauren
Go to speech therapy
by twhelan3
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