A Oculopharyngeal muscular dystrophy interview .

Glenn's interview


How did all start?

2 years ago this month where my life changed january 14 2017

Do you already have a diagnosis? How long did it take you to get it?

3 months

What have been your biggest difficulties?

Everyday I have struggles with discomfort pain choking phlegm

How has your social and family environment reacted? Have your social or family relationships changed?

I don’t go out I stay at home especially when I eat my family know about it I’am a fighter working

What things have you stopped doing?

Working

What do you think about the future?

Promising

So far, which years have been the best years in your life? What have you done during them?

Before I received the news that changed my life

What would you like to do if you didn’t have your condition?

Back to work doing things

If you had to describe your life in a sentence, what would it be?

That I all never give up on a cure for everybody

Finally, what advice would you give to a person in a similar situation?

Don’t give up on life


Jan 4, 2019

By: Glenn

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