Stories of Congenital Central Hypoventilation Syndrome

STORY
Congenital Central Hypoventilation Syndrome stories
Congenital Central Hypoventilation Syndrome stories
i was born on Good Friday in April of 2000, 1 month early with a very low heart not being able to process a large amount of amniotic fluid.  I remained in the NICU for a little over 3 months.  My mutation number is 20/27.  I have multi...
Congenital Central Hypoventilation Syndrome stories
Son also has CCHS with associated Hirschsprungs.
Congenital Central Hypoventilation Syndrome stories
Hello there. In 2012, I got married to a man that was diagnosed at Birth with cchs. He also had a daughter that was diagnosed at Birth with cchs. I am both of their primary care person, outside of doctors of course. As of right now, I have 4 good nur...

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Congenital Central Hypoventilation Syndrome forum

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Statistics of Congenital Central Hypoventilation Syndrome

1 people with Congenital Central Hypoventilation Syndrome have taken the SF36 survey. Mean of Congenital Central Hypoventilation Syndrome is 1490 points (41 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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