Are there natural treatment(s) that may improve the quality of life of people with Oral-Facial-Digital Syndrome? Here you can see if there is any natural remedy and/or treatment that can help people with Oral-Facial-Digital Syndrome

▷ Is there any natural treatment for Oral-Facial-Digital Syndrome?

Stories of Oral-Facial-Digital Syndrome

ORAL-FACIAL-DIGITAL SYNDROME STORIES

VIEWS

BY

I am a 27 year old female who was born with a rare syndrome known as OFD-1 or Oral Facial Digital Syndrome Type 1. It affects my teeth, tongue, nose, fingers, toes, and scalp. I have severe TMJ. My jaws are misaligned and its very painful when I ta...

297

5/21/17, 2:13 PM by Ashley Narragon

DAUGHTER BORN WITH OFD1

My daughter was born with this condition.

279

7/3/18, 10:37 PM by carolyn

GEORGIE

My Daughter Georgie was born in 2009 (8yrz) with all that comes with oral facial digital syndrome type 1 few examples cleft palate split tongue tongue the 4 polyps on tongue dimples in her cheeks...it took 2years to get diagnosis as Georgies bloods h...

225

9/13/17, 5:52 AM by Natalie

DAUGHTER WITH OFD

I have a daughter with OFD type 1 born in 2015

204

9/12/17, 6:16 PM by Tam

GRETA IS BORN IN 2016, WE GOT THE DIAGNOSIS IN THE BEGINNING OF 2019

Our daughter Greta has OFD1 syndrome. At birth she had a median cleft lip and a tongue band that was too short. She had her first tooth at birth but it had to be removed. She is now 2 3/4 years old and has a slight developmental delay. For example, s...

Is there any natural treatment for Oral-Facial-Digital Syndrome?