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I am a 27 year old female who was born with a rare syndrome known as OFD-1 or Oral Facial Digital Syndrome Type 1. It affects my teeth, tongue, nose, fingers, toes, and scalp. I have severe TMJ. My jaws are misaligned and its very painful when I ta...
My Daughter Georgie was born in 2009 (8yrz) with all that comes with oral facial digital syndrome type 1 few examples cleft palate split tongue tongue the 4 polyps on tongue dimples in her cheeks...it took 2years to get diagnosis as Georgies bloods h...
Our daughter Greta has OFD1 syndrome. At birth she had a median cleft lip and a tongue band that was too short. She had her first tooth at birth but it had to be removed. She is now 2 3/4 years old and has a slight developmental delay. For example, s...
