Stories of Osteopetrosis

Osteopetrosis stories
I found out I had very dense bones by accident after taking an x-ray for a possible broken wrist. Aside from breaking both knee caps (a year apart) I didn't think much about the disease until I was in my mid 40's. At that time I began having horrific...
Osteopetrosis stories
hello, I'm a 16 year old young lady that has had osteopetrosis since I was 6 months old! I had a bone marrow transplant back In 2010 when I was 10 years old, and im getting ready for another one in august🌸 I've broken over 70+ bones! Please pr...

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Osteopetrosis forum


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Statistics of Osteopetrosis

15 people with Osteopetrosis have taken the SF36 survey. Mean of Osteopetrosis is 1385 points (38 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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