A Osteopetrosis interview .

Mary's interview


How did all start?

Doctors diagnosed it when I was 17 and had an upper GI series done

Do you already have a diagnosis? How long did it take you to get it?

Yes, I was diagnosed 47 years ago and have been trying to learn more ever since

For what medical specialties have you been treated? What has been the most useful specialty for your?

I have had 7 hip replacements and revisions on my left hip

What has been the most useful thing for you so far?

Nothing

What have been your biggest difficulties?

Micro fractures

How has your social and family environment reacted? Have your social or family relationships changed?

Hard for anyone to understand the pain that does not have it

What things have you stopped doing?

Anything that might cause me to get a fracture

What do you think about the future?

It is in God's hands

So far, which years have been the best years in your life? What have you done during them?

Early 20s when my children were small

What would you like to do if you didn’t have your condition?

Run

If you had to describe your life in a sentence, what would it be?

My life is a reflection of God's love

Finally, what advice would you give to a person in a similar situation?

Trust God with your life


Dec 16, 2017

By: Mary

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