- Osteopetrosis
- Interviews
Mary's interview
How did all start?
Doctors diagnosed it when I was 17 and had an upper GI series done
Do you already have a diagnosis? How long did it take you to get it?
Yes, I was diagnosed 47 years ago and have been trying to learn more ever since
For what medical specialties have you been treated? What has been the most useful specialty for your?
I have had 7 hip replacements and revisions on my left hip
What has been the most useful thing for you so far?
Nothing
What have been your biggest difficulties?
Micro fractures
How has your social and family environment reacted? Have your social or family relationships changed?
Hard for anyone to understand the pain that does not have it
What things have you stopped doing?
Anything that might cause me to get a fracture
What do you think about the future?
It is in God's hands
So far, which years have been the best years in your life? What have you done during them?
Early 20s when my children were small
What would you like to do if you didn’t have your condition?
Run
If you had to describe your life in a sentence, what would it be?
My life is a reflection of God's love
Finally, what advice would you give to a person in a similar situation?
Trust God with your life
