A Panhypopituitarism interview .

bobbrady12's interview


How did all start?

I was diagnosed @ the age of 11, I was smaller than my peers / siblings Had headaches, constantly thirsty, peripheral vision loss, Had a routine blood test which detected abnormalities with hormone levels, was then referred to an Endocrine team who preformed extensive tests including a CT Scan, results of which found a Tumour on Pituitary Gland, I was immediately started on Hormone replacement meditation due to results/ symptoms

Do you already have a diagnosis? How long did it take you to get it?

Was diagnosed with a non functioning tumour of the Pituitary Gland, it took 1 year from Diagnosis to surgery, In a year the Tumour had doubled in size, my Pituitary Gland was removed due to damage & size of Tumour!

For what medical specialties have you been treated? What has been the most useful specialty for your?

Neurologist Endocrinologist

What has been the most useful thing for you so far?

Finding support groups and speaking to other People diagnosed with the condition

What have been your biggest difficulties?

Taking control of my life Lack of self esteem / confidence Body dismorphia

How has your social and family environment reacted? Have your social or family relationships changed?

No

What things have you stopped doing?

Socialising

What do you think about the future?

Future is bright, I married, we have a 2year old son, and I’m in full time employment

So far, which years have been the best years in your life? What have you done during them?

2014 got married to my wonderful wife 2015 our son was born

What would you like to do if you didn’t have your condition?

Travel more, drive a car / truck Fly an airplane

If you had to describe your life in a sentence, what would it be?

Lucky to be alive

Finally, what advice would you give to a person in a similar situation?

Ask lots of Questions during your appointment With Neurosurgeon / Endocrinologist Find good support group


Oct 27, 2017

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