- Panhypopituitarism
- Interviews
bobbrady12's interview
How did all start?
I was diagnosed @ the age of 11,
I was smaller than my peers / siblings
Had headaches, constantly thirsty,
peripheral vision loss,
Had a routine blood test which detected abnormalities with hormone levels, was then referred to an Endocrine team who preformed extensive tests including a CT Scan, results of which found a Tumour on Pituitary Gland,
I was immediately started on Hormone replacement meditation due to results/ symptoms
Do you already have a diagnosis? How long did it take you to get it?
Was diagnosed with a non functioning tumour of the Pituitary Gland, it took 1 year from Diagnosis to surgery,
In a year the Tumour had doubled in size, my Pituitary Gland was removed due to damage & size of Tumour!
For what medical specialties have you been treated? What has been the most useful specialty for your?
Neurologist
Endocrinologist
What has been the most useful thing for you so far?
Finding support groups and speaking to other
People diagnosed with the condition
What have been your biggest difficulties?
Taking control of my life
Lack of self esteem / confidence
Body dismorphia
How has your social and family environment reacted? Have your social or family relationships changed?
No
What things have you stopped doing?
Socialising
What do you think about the future?
Future is bright, I married, we have a 2year old son, and I’m in full time employment
So far, which years have been the best years in your life? What have you done during them?
2014 got married to my wonderful wife
2015 our son was born
What would you like to do if you didn’t have your condition?
Travel more,
drive a car / truck
Fly an airplane
If you had to describe your life in a sentence, what would it be?
Lucky to be alive
Finally, what advice would you give to a person in a similar situation?
Ask lots of Questions during your appointment
With Neurosurgeon / Endocrinologist
Find good support group