Stories of Paroxysmal nocturnal hemoglobinuria

STORY
Paroxysmal nocturnal hemoglobinuria stories
Paroxysmal nocturnal hemoglobinuria stories
10 years old girl suffering from PNH
Paroxysmal nocturnal hemoglobinuria stories
I was diagnosed with Psoriatic arthritis at age 19. After many medication I was put on enbre ant tbf medication. This worked great for 3 years until my platelets and HB started dropping.  I was referred to see a haematologist and after 2 years,...

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Statistics of Paroxysmal nocturnal hemoglobinuria

6 people with Paroxysmal nocturnal hemoglobinuria have taken the SF36 survey. Mean of Paroxysmal nocturnal hemoglobinuria is 1812 points (50 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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