There are 152 people in the Paroxysmal nocturnal hemoglobinuria map

Paroxysmal nocturnal hemoglobinuria advice

Which advice would you give to someone who has just been diagnosed wit...

Paroxysmal nocturnal hemoglobinuria life expectancy

What is the life expectancy of someone with Paroxysmal nocturnal hemog...

Paroxysmal nocturnal hemoglobinuria causes

Which are the causes of Paroxysmal nocturnal hemoglobinuria?

Couple and Paroxysmal nocturnal hemoglobinuria

Is it easy to find a partner and/or maintain relationship when you hav...


Stories of Paroxysmal nocturnal hemoglobinuria

STORY
Paroxysmal nocturnal hemoglobinuria stories
10 years old girl suffering from PNH
Paroxysmal nocturnal hemoglobinuria stories
I was diagnosed with Psoriatic arthritis at age 19. After many medication I was put on enbre ant tbf medication. This worked great for 3 years until my platelets and HB started dropping.  I was referred to see a haematologist and after 2 years,...

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Paroxysmal nocturnal hemoglobinuria forum

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Statistics of Paroxysmal nocturnal hemoglobinuria

7 people with Paroxysmal nocturnal hemoglobinuria have taken the SF36 survey. Mean of Paroxysmal nocturnal hemoglobinuria is 1719 points (48 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Paroxysmal nocturnal hemoglobinuria