Story about Paroxysmal nocturnal hemoglobinuria , Paroxysmal nocturnal hemoglobinuria, Psoriasis.

Rubbish health!!

Mar 18, 2017

By: Mandy


_I was diagnosed with Psoriatic arthritis at age 19. After many medication I was put on enbre ant tbf medication. This worked great for 3 years until my platelets and HB started dropping. _

_I was referred to see a haematologist and after 2 years, 3 soon to 4 bone marrow biopsy, 5 immune suppression medication, 70ish units of blood they still can't diagnose me. The think its Aplastic anemia. ATG booked for August 2017__if Himira doesn't work. _

_while trying to diagnose my bone marrow failure PNH was picked up. My clone size is small but growing. It started at 0.5% and is now 8.8%_

 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Is Paroxysmal nocturnal hemoglobinuria contagious?

Is Paroxysmal nocturnal hemoglobinuria contagious?

Paroxysmal nocturnal hemoglobinuria diet

Paroxysmal nocturnal hemoglobinuria diet. Is there a diet which improv...

Living with Paroxysmal nocturnal hemoglobinuria

Living with Paroxysmal nocturnal hemoglobinuria. How to live with Paro...

Couple and Paroxysmal nocturnal hemoglobinuria

Is it easy to find a partner and/or maintain relationship when you hav...

Latest progress of Paroxysmal nocturnal hemoglobinuria

What are the latest advances in Paroxysmal nocturnal hemoglobinuria?

Paroxysmal nocturnal hemoglobinuria sports

Is it advisable to do exercise when affected by Paroxysmal nocturnal h...

Paroxysmal nocturnal hemoglobinuria prognosis

Paroxysmal nocturnal hemoglobinuria prognosis

Celebrities with Paroxysmal nocturnal hemoglobinuria

Celebrities with Paroxysmal nocturnal hemoglobinuria