There are 57 people in the Parry-Romberg syndrome / Progressive hemifacial atrophy map

Do I have Parry-Romberg syndrome / Progressive hemifacial atrophy?

How do I know if I have Parry-Romberg syndrome / Progressive hemifacia...

Parry-Romberg syndrome / Progressive hemifacial atrophy jobs

Can people with Parry-Romberg syndrome / Progressive hemifacial atroph...

3 answers
Natural treatment of Parry-Romberg syndrome / Progressive hemifacial atrophy

Is there any natural treatment for Parry-Romberg syndrome / Progressiv...

Parry-Romberg syndrome / Progressive hemifacial atrophy life expectancy

What is the life expectancy of someone with Parry-Romberg syndrome / P...

2 answers

Stories of Parry-Romberg syndrome / Progressive hemifacial atrophy

STORY
Parry-Romberg syndrome / Progressive hemifacial atrophy stories
My first symptoms showed up at about 4 or 5. Alopecia and skin discoloration. Slowly it progressed and at about 10 My parents began the search. I was officially diagnosed at 12 by doctors at UCLA. I was then sent to UCSF and went through several team...

Tell your story and help others

Tell my story

View more

Parry-Romberg syndrome / Progressive hemifacial atrophy forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Parry-Romberg syndrome / Progressive hemifacial atrophy

3 people with Parry-Romberg syndrome / Progressive hemifacial atrophy have taken the SF36 survey. Mean of Parry-Romberg syndrome / Progressive hemifacial atrophy is 1640 points (46 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Share

Parry-Romberg syndrome / Progressive hemifacial atrophy