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Pemphigus prognosis

What is the prognosis if you have Pemphigus? Quality of life, limitations and expectatios of someone with Pemphigus.

Pemphigus prognosis

Pemphigus is a rare autoimmune disorder that affects the skin and mucous membranes. It is characterized by the formation of blisters and erosions on the skin and mucous membranes, which can be painful and debilitating. The prognosis of pemphigus can vary depending on several factors.



Severity of the disease: The severity of pemphigus can range from mild to severe. Mild cases may be limited to a few blisters and can be managed with appropriate treatment. However, severe cases can involve extensive blistering and erosions, leading to significant complications and a poorer prognosis.



Age and overall health: The age and overall health of the individual can also impact the prognosis. Younger individuals with good overall health tend to have a better prognosis compared to older individuals or those with underlying health conditions.



Early diagnosis and treatment: Early diagnosis and prompt initiation of treatment play a crucial role in improving the prognosis of pemphigus. Timely intervention can help control the disease, prevent complications, and improve the quality of life for individuals with pemphigus.



Treatment response: The response to treatment can vary among individuals. Some individuals may respond well to medications such as corticosteroids and immunosuppressants, leading to disease control and remission. However, others may experience a more resistant form of pemphigus, requiring more aggressive treatment approaches and potentially impacting the prognosis.



Complications: Pemphigus can lead to various complications, including infections, sepsis, and electrolyte imbalances. The development of complications can worsen the prognosis and increase the risk of mortality.



Overall, the prognosis of pemphigus can be highly variable. With appropriate management and treatment, many individuals with pemphigus can achieve disease control and experience long periods of remission. However, it is important to note that pemphigus is a chronic condition that requires ongoing care and monitoring. Regular follow-up with healthcare professionals specializing in dermatology or autoimmune disorders is essential to manage the disease effectively and improve the long-term prognosis.


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Stories of Pemphigus

PEMPHIGUS STORIES
Pemphigus stories
In April, 2012 I saw my dentist about a sore which didn't heal and was given antibiotics. When these made no difference, I went back to the dentist. She seemed unsure what to do and I pushed for an investigation, saying "Are you sure it's not cancer?...
Pemphigus stories
Diagonsed with Lupus originally, but the medicines were not working.  After 4 skin biopsies, PE was confirmed.  I've been through Imuran, CellCept, Plaquenil, Dapsone, and Plaquenil/Dapsone combined.  Have been on steriods since confirmation.  St...
Pemphigus stories
I was diagnosed with Bullous Pemphigoid in 2008. Now in remission after treatment for 2 years at OHSU with Prednisone, Tetracycine and Cellcept.
Pemphigus stories
Not unlike other patients, I fist had what I thought was an insect bite.  Then it grew and grew on upper back till I was covered in 3" blisters. Went to Bevelry Hills dermatologist. Misdiagnosed for 4 months.  Blood tests said PV; biopsy said negat...
Pemphigus stories
I was diagnosed with the disease in 2012, by a eye doctor in Greenville SC. He referred me too Emory University Hospital in Atlanta Georgia, my doctors are Dr Feldman (Derm) and Dr Dholakia (Optomoligist), I have had seven treatments of Rituxamab ove...

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