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Congenital bilateral perisylvian syndrome prognosis

What is the prognosis if you have Congenital bilateral perisylvian syndrome? Quality of life, limitations and expectatios of someone with Congenital bilateral perisylvian syndrome.

Congenital bilateral perisylvian syndrome prognosis

Congenital bilateral perisylvian syndrome (CBPS) is a rare neurological disorder that affects the development of the brain. It is characterized by structural abnormalities in the perisylvian region, which is responsible for language and motor functions. CBPS typically manifests in early childhood and can have a significant impact on an individual's communication and motor skills.



The prognosis of CBPS varies depending on the severity of the condition and the individual's specific symptoms. Some individuals with CBPS may have mild to moderate impairments, while others may experience more severe challenges. It is important to note that CBPS is a lifelong condition, and there is currently no cure.



Communication difficulties are a hallmark feature of CBPS. Individuals with CBPS may have limited speech abilities or be completely nonverbal. They may also struggle with understanding and processing language. However, with appropriate interventions such as speech therapy and augmentative and alternative communication (AAC) devices, individuals with CBPS can improve their communication skills and find alternative ways to express themselves.



Motor impairments are another common aspect of CBPS. These can range from mild coordination difficulties to more severe motor challenges, such as difficulties with fine motor skills or coordination of movements. Occupational therapy and physical therapy can help individuals with CBPS improve their motor skills and enhance their independence in daily activities.



Intellectual abilities can vary widely among individuals with CBPS. While some individuals may have average or above-average intelligence, others may have intellectual disabilities. It is important to provide appropriate educational support and accommodations to help individuals with CBPS reach their full potential.



With early diagnosis and comprehensive interventions, individuals with CBPS can make significant progress in their development and lead fulfilling lives. However, it is crucial to understand that the prognosis for CBPS is highly individualized, and each person's journey will be unique. Ongoing support from healthcare professionals, therapists, educators, and a strong support network can greatly contribute to the overall well-being and quality of life for individuals with CBPS.


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Depending on how severe it is affecting your loved one and their quality of life. Some could love to be 40 some and some don't make it past 2.

Posted Feb 17, 2020 by Momof2miracles Jess Sundquist 4256

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CONGENITAL BILATERAL PERISYLVIAN SYNDROME STORIES
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What started out as my boy was just missing milestones, turned into more serious frequent pneumonia hospitalizations, weak immune system, troubles with aspirating and swallowing foods. We did genetic testing for years and everything kept coming back ...

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