There are 90 people in the Peutz-Jeghers syndrome map

Peutz-Jeghers syndrome advice

Which advice would you give to someone who has just been diagnosed wit...

Couple and Peutz-Jeghers syndrome

Is it easy to find a partner and/or maintain relationship when you hav...

Living with Peutz-Jeghers syndrome

How to live with Peutz-Jeghers syndrome? Can you be happy living with ...

Is Peutz-Jeghers syndrome hereditary?

Is Peutz-Jeghers syndrome hereditary?


Stories of Peutz-Jeghers syndrome

STORY
Peutz-Jeghers syndrome stories
I was 14 when I was diagnosed with this 'gift'. It was the morning after my freshman dance in high school! I woke up in extreme abdominal pain. The day went on and it got worse. I ended up in the local ER. They saw it was an obstruction. They calmed ...
Peutz-Jeghers syndrome stories
My name is Dale. I was diagnosed with Peutz Jeghers Syndrome in 1993 when i had my first surgery for obstructing Polyps however i have been carefully watched by the Drs from the age of 1 as my father had this syndome all of his life . I had the early...
Peutz-Jeghers syndrome stories
I was suspected to have PJS around age 5 due to several freckle spots on and in my mouth, been to several doctors.  At age 9 went to have my first endoscopy/colonoscopy and several polyps removed.  I had a GI bleed from stress Ulcers the ne...
Peutz-Jeghers syndrome stories
Hi All, Thanks for reading my short story! 44 years old, 24 years ago diagnosed with PJS. Since then had several oparations. Biggest problems are tied to my small intestine. I have regular checkups.   Sorry for my poor English sometimes :...
Peutz-Jeghers syndrome stories
My granddaughter is 21 years old, and was diagnosed with PJS when she was 15, with genetic testing, and most all the characteristics of the syndrom, including an intussecption requiring a small bowel resection.  She also has Tetrology of Fallot,...

Tell your story and help others

Tell my story

View more

Peutz-Jeghers syndrome forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Peutz-Jeghers syndrome

9 people with Peutz-Jeghers syndrome have taken the SF36 survey. Mean of Peutz-Jeghers syndrome is 2459 points (68 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Peutz-Jeghers syndrome