My name is Dale. I was diagnosed with Peutz Jeghers Syndrome in 1993 when i had my first surgery for obstructing Polyps however i have been carefully watched by the Drs from the age of 1 as my father had this syndome all of his life . I had the early...
I was 14 when I was diagnosed with this 'gift'. It was the morning after my freshman dance in high school! I woke up in extreme abdominal pain. The day went on and it got worse. I ended up in the local ER. They saw it was an obstruction. They calmed ...
I was suspected to have PJS around age 5 due to several freckle spots on and in my mouth, been to several doctors. At age 9 went to have my first endoscopy/colonoscopy and several polyps removed. I had a GI bleed from stress Ulcers the ne...
Hi All,
Thanks for reading my short story!
44 years old, 24 years ago diagnosed with PJS.
Since then had several oparations.
Biggest problems are tied to my small intestine.
I have regular checkups.
Sorry for my poor English sometimes :...
My granddaughter is 21 years old, and was diagnosed with PJS when she was 15, with genetic testing, and most all the characteristics of the syndrom, including an intussecption requiring a small bowel resection. She also has Tetrology of Fallot,...
13 people with Peutz-Jeghers syndrome have taken the SF36 survey. Mean of Peutz-Jeghers syndrome is 2253 points (63 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
