There are 300 people in the Phenylketonuria map

Phenylketonuria cure

Does Phenylketonuria have a cure?

2 answers
Phenylketonuria jobs

Can people with Phenylketonuria work? What kind of work can they perfo...

3 answers
Latest progress of Phenylketonuria

What are the latest advances in Phenylketonuria?

1 answer
Phenylketonuria treatments

What are the best treatments for Phenylketonuria?

3 answers

Stories of Phenylketonuria

Phenylketonuria stories
I was a month old went the doctors  told my parents that I have pku. I'm 42 years old. I got married in 2005. To a really nice guy but in 2009 my husband passed away on February 13, 2009. At that time I went off diet for 5 years.  And it re...
Phenylketonuria stories
Hi! I'm Andreia. I'm 28 years old. I'm from Portugal living in irland Since 2014. I was diagnosed when I was 12 days old. Still following my diet. My family did everything they could to give me all I needed. I'm a nurse now, have a job, starting my o...
Phenylketonuria stories
Hello to everyone that reads! im currently 19 with a PKU toddler! he was born march 7th 2014. got a call on the 12th and then took a nice long ride a ccouple hundred miles away on the 14th to my son's pku clinic. they explained everything to me and h...
Phenylketonuria stories
Found out my baby daughter has got PKU, still getting my head around it all
Phenylketonuria stories
It's actually my children that have PKU. Both diagnosed within ten days of birth and doing very well. My daughter is now nearly ten and currently on 7.5 exc. per day. My son is 5 and on 7 exc. per day.  Both are treated at Bristol Childrens Ho...

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Statistics of Phenylketonuria

1 people with Phenylketonuria have taken the SF36 survey. Mean of Phenylketonuria is 670 points (19 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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