PKU Parent
Jan 3, 2016
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Hello to everyone that reads! im currently 19 with a PKU toddler! he was born march 7th 2014. got a call on the 12th and then took a nice long ride a ccouple hundred miles away on the 14th to my son's pku clinic. they explained everything to me and his dad and we have been working with his diet since. it was hard at first since my family didn't want to listen about the diet but they soon got over it and now everyone works together with everything! in a few months we will be starting kuvan so we are hoping all goes well! its been a long a almost two years and we are no where near done! but i wouldn't have it any other way
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