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Which advice would you give to someone who has just been diagnosed with Phyllodes tumor?

See some advice from people with experience in Phyllodes tumor to people who have just been diagnosed with Phyllodes tumor

Phyllodes tumor advice

Advice for Someone Diagnosed with Phyllodes Tumor


Receiving a diagnosis of Phyllodes tumor can be overwhelming and raise numerous questions and concerns. It is important to remember that you are not alone in this journey. Here are some key pieces of advice to help you navigate through this challenging time:




  1. Seek Expert Medical Advice: Schedule an appointment with a specialist who has experience in treating Phyllodes tumors. They will be able to provide you with accurate information about your specific case and guide you through the treatment options available.


  2. Educate Yourself: Take the time to learn about Phyllodes tumors, their characteristics, and potential treatment approaches. Understanding the condition will empower you to make informed decisions about your healthcare and actively participate in your treatment plan.


  3. Ask Questions: Don't hesitate to ask your healthcare provider any questions you may have. It is crucial to have a clear understanding of your diagnosis, treatment options, potential side effects, and long-term prognosis. Write down your questions before appointments to ensure you cover all your concerns.


  4. Build a Support Network: Reach out to your loved ones, friends, and support groups to share your diagnosis. Having a strong support network can provide emotional support, practical assistance, and a listening ear during this challenging time.


  5. Consider Seeking a Second Opinion: If you have any doubts or concerns about your diagnosis or treatment plan, it is perfectly acceptable to seek a second opinion from another qualified specialist. This can provide you with additional perspectives and help you make more confident decisions about your healthcare.


  6. Take Care of Your Emotional Well-being: A Phyllodes tumor diagnosis can be emotionally taxing. It is essential to prioritize your mental health and seek professional help if needed. Therapists, counselors, or support groups can assist you in coping with the emotional challenges that may arise during your treatment journey.


  7. Follow Your Treatment Plan: Once you and your healthcare provider have decided on a treatment plan, it is crucial to adhere to it diligently. Attend all appointments, follow medication instructions, and make necessary lifestyle changes to optimize your chances of successful treatment outcomes.


  8. Stay Informed About Clinical Trials: Clinical trials can offer access to innovative treatments and therapies that may not be widely available. Discuss with your healthcare provider if participating in a clinical trial is a viable option for you.


  9. Take Care of Your Overall Health: Maintaining a healthy lifestyle can positively impact your overall well-being and potentially improve treatment outcomes. Focus on eating a balanced diet, engaging in regular exercise (if approved by your healthcare provider), getting enough rest, and managing stress effectively.


  10. Stay Positive and Hopeful: While a Phyllodes tumor diagnosis can be challenging, it is important to maintain a positive mindset and stay hopeful. Advances in medical research and treatment options are continually being made, and many individuals have successfully overcome this condition.



Remember, every individual's journey with Phyllodes tumor is unique, and your healthcare provider will tailor your treatment plan to your specific needs. Surround yourself with a strong support system, stay informed, and take an active role in your healthcare decisions. With the right medical care, emotional support, and a positive outlook, you can navigate through this challenging time and work towards the best possible outcome.


Diseasemaps
15 answers
zo snel mogenlijk een operatie met marge

Posted Jan 27, 2018 by Phyllodesfoundation.com
First positive attitude.Find an oncologist that will treat it aggressively. Have it removed with wide margins or if it is too large have the breast removed. Have 6 month mammograms, ultrasounds and yearly chest x-rays to make sure it doesn't metastasize into the lungs.

Posted Apr 28, 2017 by Mary Jane Brother 1100
Make sure they have clean wide margins and keep checking for new lumps.

Posted May 9, 2017 by Rhonda 1010
Take one day at a time. Read and empower yourself with knowledge about this disease ado you can intake educated decisions.

Posted Oct 7, 2017 by Wendy Nelson 1500
Find a team that will treat it with speed with removal and clear margins given.
Read up and empower yourself with knowledge .
Join the face book group as it has all around the world members .
Live each day doing something in that you love.
Enjoy life .

Posted Oct 8, 2017 by 1200
Best is not to panic but stay on top of it. Which means not to be paranoid but alerted. And get a good doctor who is up-to-date with this desease.

Posted Nov 26, 2017 by Sabrina 2500
After my initial diagnosis I was “hungry”
For information - support groups on social
Media can be fantastic!

Posted May 6, 2018 by Marie 2500
Have it removed. They can be aggressive. They can also be easily misdiagnosed. Until it is removed and biopsied you can not know 100%.

Posted Jul 11, 2018 by LilSiss 550
Take someone with you to appointments to ensure they hear the full information given to you about what is happening and what will happen next

Have a list of questions no question is silly

Posted Nov 11, 2018 by 3050
Again it depend if benign or borderline or malign.

Posted Jun 3, 2019 by Nathalie 1600
If it is malignant then surely go for surgery and be fast at it

Posted Aug 24, 2019 by Raji Bedi 1500
Get it looked at, don't wait, dont allow a GP to fob you off.
Usually you know more than the doctor as they don't know what a PT is.

Posted Aug 10, 2020 by Simone Lovett 2550
Get it removed with wide margins immediately, even if the biopsy says it's benign. They cannot be fully categorized unless removed completely, and often biopsy benign when they are really malignant. Don't wait, don't waste time trying alternatives, just get it surgically removed as soon as possible.

Posted Sep 25, 2020 by KillPhyll 1850
See a sarcoma specialist with experience of phyllodes. Make sure they remove it with wide margins. Join the Phyllodes support group on Facebook.

Posted Sep 26, 2020 by Lucy 3570

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PHYLLODES TUMOR STORIES
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In February 2015 I found a lump in my right breast. I was diagnozed with fibroadenoma, but it appeared to be a benign PT (2 cm., surgery in March). No margins taken although the initial path report stated BPT. Final path report confirmed no clear tis...
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I had what was termed a harmless fibroadenoma removed in June of 2007. At the age of 33, I had my first baby and was nursing him. He was born in December. The following November, I noticed that my scar tissue felt different. I had an ultrasound and ...
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After years of multiple lumpbectomies ,seeing a oncologist due to my sister having breast cancer ,my high risk and Years of mammograms, ultrasounds and breast MRIS. My Dr. Advised me to get a prophylactic mastectomy due to things still being found an...
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My MPT started a year after constant stress and caring for a partner with cancer. I had no time for myself to keep my stress levels down and I believe this is the reason I became ill. Though doctors had some knowledge of the disease it was not I fel...
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I felt a rather large Lump in my Left Breast at the 2 O'Clock position. I was just due for my Mammogram and scheduled it. A subsequent needle biopsy showed MPT with Liposarcoma component. I am scheduled for a bilateral Mastectomy 8/18/15 with reconst...

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