I started this foundation to create awareness for the syndrome as my son was born with the condition in October 2008.
The Story of Joshua Parkes and how this foundation came into being.
Joshua was born on the 20th October 2008, the happiest da...
hello everyone
My son was born the 3/3/16. My son is 6 months old almost 7months old he has microcephaly, laryngomalica, dancing eyes, vocal cord palsy, brain atrophy, PRS (pierre robin sequence) and a high palate, sleep apnea, breathing probl...
My son Bernard (little B) was born on Aug. 2 2014. We had no idea at time of birth that anything was wrong with him. I had a scheduled C-section for Aug. 24 but he decided to come early. As I was laying on the operating table I heard a faint whimper ...
My daughter was born 1/12/2010 midwife led birthing center flat and unresponsive. She required cpr and quickly and immediate transfer to the neonatal intensive care unit. She was then diagnosed with Pierre robin yndrome, microcargnathia and horse sho...
4 people with Pierre Robin Syndrome have taken the SF36 survey. Mean of Pierre Robin Syndrome is 2366 points (66 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
