There are 142 people in the Pierre Robin Syndrome map

Latest progress of Pierre Robin Syndrome

What are the latest advances in Pierre Robin Syndrome?

Do I have Pierre Robin Syndrome?

How do I know if I have Pierre Robin Syndrome?

1 answer
ICD9 and ICD10 codes of Pierre Robin Syndrome

ICD10 code of Pierre Robin Syndrome and ICD9 code

Living with Pierre Robin Syndrome

How to live with Pierre Robin Syndrome? Can you be happy living with P...

2 answers

Stories of Pierre Robin Syndrome

Pierre Robin Syndrome stories
I started this foundation to create awareness for the syndrome as my son was born with the condition in October 2008. The Story of Joshua Parkes and how this foundation came into being. Joshua was born on the 20th October 2008, the happiest da...
Pierre Robin Syndrome stories
hello everyone My son was born the 3/3/16. My son is 6 months old almost 7months old he has microcephaly,  laryngomalica, dancing eyes, vocal cord palsy, brain atrophy, PRS (pierre robin sequence) and a high palate, sleep apnea, breathing probl...
Pierre Robin Syndrome stories
My daughter was born with mild PRS and a cleft soft palate. 
Pierre Robin Syndrome stories
My son Bernard (little B) was born on Aug. 2 2014. We had no idea at time of birth that anything was wrong with him. I had a scheduled C-section for Aug. 24 but he decided to come early. As I was laying on the operating table I heard a faint whimper ...
Pierre Robin Syndrome stories
My daughter was born 1/12/2010 midwife led birthing center flat and unresponsive. She required cpr and quickly and immediate transfer to the neonatal intensive care unit. She was then diagnosed with Pierre robin yndrome, microcargnathia and horse sho...

Tell your story and help others

Tell my story

View more

Pierre Robin Syndrome forum


Ask a question and get answers from other users.

Ask a question

View more

Statistics of Pierre Robin Syndrome

4 people with Pierre Robin Syndrome have taken the SF36 survey. Mean of Pierre Robin Syndrome is 2366 points (66 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Pierre Robin Syndrome