Stories of Pierre Robin Syndrome

Pierre Robin Syndrome stories
I am currently working as a Craniofacial Awareness Advocate.   As a high-school and college dropout, I earned college degrees after returning to school - studying Criminal Justice with a minor in Psychology. I hope to continue on a path of stu...
Pierre Robin Syndrome stories
hello everyone My son was born the 3/3/16. My son is 6 months old almost 7months old he has microcephaly,  laryngomalica, dancing eyes, vocal cord palsy, brain atrophy, PRS (pierre robin sequence) and a high palate, sleep apnea, breathing probl...
Pierre Robin Syndrome stories
My daughter was born with mild PRS and a cleft soft palate. 
Pierre Robin Syndrome stories
I started this foundation to create awareness for the syndrome as my son was born with the condition in October 2008. The Story of Joshua Parkes and how this foundation came into being. Joshua was born on the 20th October 2008, the happiest da...
Pierre Robin Syndrome stories
My son Bernard (little B) was born on Aug. 2 2014. We had no idea at time of birth that anything was wrong with him. I had a scheduled C-section for Aug. 24 but he decided to come early. As I was laying on the operating table I heard a faint whimper ...

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Statistics of Pierre Robin Syndrome

4 people with Pierre Robin Syndrome have taken the SF36 survey. Mean of Pierre Robin Syndrome is 2366 points (66 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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