There are 169 people in the Pierre Robin Syndrome map

Pierre Robin Syndrome life expectancy

What is the life expectancy of someone with Pierre Robin Syndrome?

2 answers
Is Pierre Robin Syndrome contagious?

Is Pierre Robin Syndrome contagious?

3 answers
ICD9 and ICD10 codes of Pierre Robin Syndrome

ICD10 code of Pierre Robin Syndrome and ICD9 code

Is Pierre Robin Syndrome hereditary?

Is Pierre Robin Syndrome hereditary?

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Stories of Pierre Robin Syndrome

STORY
Pierre Robin Syndrome stories
I started this foundation to create awareness for the syndrome as my son was born with the condition in October 2008. The Story of Joshua Parkes and how this foundation came into being. Joshua was born on the 20th October 2008, the happiest da...
Pierre Robin Syndrome stories
hello everyone My son was born the 3/3/16. My son is 6 months old almost 7months old he has microcephaly,  laryngomalica, dancing eyes, vocal cord palsy, brain atrophy, PRS (pierre robin sequence) and a high palate, sleep apnea, breathing probl...
Pierre Robin Syndrome stories
My daughter was born with mild PRS and a cleft soft palate. 
Pierre Robin Syndrome stories
My son Bernard (little B) was born on Aug. 2 2014. We had no idea at time of birth that anything was wrong with him. I had a scheduled C-section for Aug. 24 but he decided to come early. As I was laying on the operating table I heard a faint whimper ...
Pierre Robin Syndrome stories
My daughter was born 1/12/2010 midwife led birthing center flat and unresponsive. She required cpr and quickly and immediate transfer to the neonatal intensive care unit. She was then diagnosed with Pierre robin yndrome, microcargnathia and horse sho...

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Pierre Robin Syndrome forum

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Statistics of Pierre Robin Syndrome

4 people with Pierre Robin Syndrome have taken the SF36 survey. Mean of Pierre Robin Syndrome is 2366 points (66 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Pierre Robin Syndrome