Story about Pierre Robin Syndrome .

Esme

Aug 14, 2017


My daughter was born 1/12/2010 midwife led birthing center flat and unresponsive. She required cpr and quickly and immediate transfer to the neonatal intensive care unit. She was then diagnosed with Pierre robin yndrome, microcargnathia and horse shoe kidneys.

she stayed in scubu for 21 days and came home with an no feeding tube and an npa in her nostril to help with breathing and to stop her small younger from flopping back and chocking.

she had a full cleft palate wich was repaired at 6 months and after that she thrived.

 

shes now 2 and a half and the only concern is a mild speech delay. She's a little petite but an amazing character. 

 

The cleft team at morriston hospital were anazing through out and the CLAPPA community are there every step of the way. 

 

Im in awe of how strong she's been in her little life alread.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


ICD9 and ICD10 codes of Pierre Robin Syndrome

ICD10 code of Pierre Robin Syndrome and ICD9 code

Celebrities with Pierre Robin Syndrome

Celebrities with Pierre Robin Syndrome

History of Pierre Robin Syndrome

What is the history of Pierre Robin Syndrome?

Pierre Robin Syndrome diagnosis

How is Pierre Robin Syndrome diagnosed?

Pierre Robin Syndrome sports

Is it advisable to do exercise when affected by Pierre Robin Syndrome?...

Pierre Robin Syndrome diet

Pierre Robin Syndrome diet. Is there a diet which improves the quality...

Is Pierre Robin Syndrome hereditary?

Is Pierre Robin Syndrome hereditary?

Natural treatment of Pierre Robin Syndrome

Is there any natural treatment for Pierre Robin Syndrome?