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Pityriasis Rubra Pilaris prognosis

What is the prognosis if you have Pityriasis Rubra Pilaris? Quality of life, limitations and expectatios of someone with Pityriasis Rubra Pilaris.

Pityriasis Rubra Pilaris prognosis

Pityriasis Rubra Pilaris (PRP) is a rare and chronic skin disorder characterized by the development of reddish-orange scaly patches, thickened skin, and small bumps. It affects both children and adults, with symptoms varying in severity and duration.



The prognosis of PRP can be challenging to determine as it varies from person to person. Some individuals may experience spontaneous remission within a few years, while others may have a more prolonged course with intermittent flare-ups. The disease can significantly impact the quality of life due to its physical and psychological effects.



There are several factors that can influence the prognosis of PRP:




  1. Age: PRP tends to be more severe in children, with a higher likelihood of spontaneous remission. In adults, the condition may persist for a longer duration.

  2. Subtype: PRP has different subtypes, including classical adult-onset, atypical adult-onset, and juvenile. The subtype can affect the severity and prognosis of the disease.

  3. Treatment: Early and appropriate treatment can help manage symptoms and improve the prognosis. However, the response to treatment varies among individuals.

  4. Associated conditions: PRP can be associated with other medical conditions, such as autoimmune disorders or infections. These underlying conditions can influence the prognosis and treatment approach.



While there is no cure for PRP, various treatment options are available to alleviate symptoms and improve the overall prognosis. These may include topical corticosteroids, oral retinoids, immunosuppressants, and phototherapy. Close monitoring by a dermatologist is essential to adjust the treatment plan based on individual response.



It is important for individuals with PRP to:




  • Follow a consistent skincare routine to manage dryness and scaling.

  • Protect the skin from excessive sun exposure.

  • Seek emotional support and join support groups to cope with the psychological impact of the condition.

  • Stay informed about the latest research and treatment options.



In conclusion, the prognosis of Pityriasis Rubra Pilaris varies depending on factors such as age, subtype, treatment, and associated conditions. While it can be a chronic condition, proper management and treatment can help control symptoms and improve the overall quality of life for individuals living with PRP.


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World map of Pityriasis Rubra Pilaris

Find people with Pityriasis Rubra Pilaris through the map. Connect with them and share experiences. Join the Pityriasis Rubra Pilaris community.

Stories of Pityriasis Rubra Pilaris

PITYRIASIS RUBRA PILARIS STORIES
Pityriasis Rubra Pilaris stories
  My name is Scott and I’m 42 years old.  I live in SE Michigan and have most of my life.  I have had PRP on my hands and feet for as long as I can remember.  It was not diagnosed until I was 14 and needed stitches on my hand.  The ER doc not...
Pityriasis Rubra Pilaris stories
Affecting elbows, knees and occasionally patches appearing elsewhere.  Haven't found a treatment that works so just take general care of skin.  
Pityriasis Rubra Pilaris stories
MY PRP Story is on my blog at : http://kevsprp.blogspot.co.uk/
Pityriasis Rubra Pilaris stories
first little lesion in early December by late January I was full on "red man".  Now on Enbrel with methotrexate and am visibly better I'm now a lovely shade of rosy pink with some newly appearing white spots. I believe I am getting better and there ...
Pityriasis Rubra Pilaris stories
I got PRP when I was 4-6 months, but first diagnosed when I was 13 years. Now I am old and have never had periods without PRP.

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Pityriasis Rubra Pilaris forum

PITYRIASIS RUBRA PILARIS FORUM
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I would like to connect with others who have had PRP that began when they were baby

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