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There are 43 people in the POEMS syndrome map
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Stories of POEMS syndrome
First symptoms in the fall of 2007. Had my stem cell transplant in november 2008. It helped a lot, but I still have neuropathy issues.
3/26/16, 6:04 AM by
PREGANCIES AND POEMS
Hi everyone. So we have quite the story. When my daughter was 6 months old, my husband hurt his back...or so he thought. But after much massage therapy and chiro and bedrest, he wasn't improving...finally he got into a neurologist who suspected...
7/26/17, 6:53 PM by
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Statistics of POEMS syndrome
people with POEMS syndrome have taken the SF36 survey. Mean of POEMS syndrome is 1048 points (29 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best.
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