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Poland Syndrome prognosis

What is the prognosis if you have Poland Syndrome? Quality of life, limitations and expectatios of someone with Poland Syndrome.

Poland Syndrome prognosis

Poland Syndrome is a rare congenital condition characterized by underdevelopment or absence of chest muscles on one side of the body, often accompanied by abnormalities in the hand and arm. The exact cause of Poland Syndrome is unknown, but it is believed to result from a disruption in the development of the embryonic chest wall during early pregnancy.



The prognosis for individuals with Poland Syndrome varies depending on the severity of the condition and the specific abnormalities present. In general, the long-term outlook is favorable, and most individuals with Poland Syndrome lead normal, healthy lives.



Physical appearance: The most noticeable aspect of Poland Syndrome is the asymmetry of the chest, with one side appearing smaller or flatter than the other. This can cause self-esteem and body image concerns, especially during adolescence. However, with appropriate medical interventions and support, individuals can learn to cope with these challenges and develop a positive self-image.



Hand and arm abnormalities: Poland Syndrome often affects the hand and arm on the same side as the chest abnormalities. These abnormalities can range from mild to severe and may include underdeveloped or missing fingers, webbing between the fingers, or skeletal deformities. Treatment options, such as hand surgery or prosthetics, can help improve hand function and appearance.



Cardiovascular and respiratory function: In some cases, Poland Syndrome may involve abnormalities in the cardiovascular or respiratory systems. These complications are rare but can potentially impact overall health. Regular medical check-ups and appropriate management can help monitor and address any potential issues.



Psychological and emotional well-being: It is important to recognize the potential psychological and emotional impact of Poland Syndrome. Support from healthcare professionals, family, and peers can play a crucial role in helping individuals cope with any challenges they may face. Counseling or support groups may also be beneficial in addressing any emotional concerns.



In conclusion, while Poland Syndrome presents physical and emotional challenges, the prognosis is generally positive. With appropriate medical interventions, support, and self-acceptance, individuals with Poland Syndrome can lead fulfilling lives and overcome any obstacles they may encounter.


Diseasemaps
6 answers
It is not chronic and stays the same although in older age there are reported problems like arthritis, kidney sizes and heart if organs were also affected.

Posted Dec 3, 2021 by POLAND SYNDROMIGHTIES
It can be made better with surgery and exercise. Really doesn't affect my life.

Posted Jun 9, 2018 by Mary Fletcher 2500
It is lifelong with a good prognosis and the potential for spinal abnormalities and arthritis as you age

Posted Jul 14, 2018 by Michael 3561
It's a condition that you're born with. You can never expect your life to be a certain way because we are forever changing and always moving forward. It can be better with some plastic surgery Or maybe another kind of treatment As I'm not aware of any other kind of treatment.

Posted Feb 14, 2020 by Lori 2500
Rarely, Poland syndrome can cause spinal health complications. It may also lead to kidney problems. Severe cases may lead to a misplacement of the heart on the right side of your chest.

Posted Jan 30, 2022 by Onipede 2500

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Stories of Poland Syndrome

POLAND SYNDROME STORIES
Poland Syndrome stories
Finding out after 50 years why my right chest is different from my left has come with some tears. I'm pleased to know I'm not a freak and not alone in the world but not knowing sooner that I have Poland syndrome has left me with mental scares that ar...
Poland Syndrome stories
http://pip-uk.org/ WAS FOUNDED IN 2011 BY MOTHER AND DAUGHTER LIZ AND SAM. THEY WERE INSPIRED BY THE BIRTH OF SAM’S FIRST CHILD, WHO WAS BORN WITH POLAND SYNDROME IN 2008. Sam, has this to say about why PIP-UK was created _Our family’s journey...
Poland Syndrome stories
When he was born I knew right away something was wrong. Aftwr a second opinion at only 17 days old he was diagnosed with Poland Syndrome. Along with numerous other problems he's a healthy boy. He is 5 now very anti-social, behavior problems and we ar...
Poland Syndrome stories
I would love to meet others with the same condition.  
Poland Syndrome stories
quando eu era criança eu sentia uma pessoa normal ate que fui virando adolescente eu vi que um lado do peito não desenvolvia  e que eu era a unica pessoa que era assim e não conhecia ninguem assim ai achei melhor esconder meu problema pois tinha ...

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