There are 208 people in the Porphyria map

Porphyria life expectancy

What is the life expectancy of someone with Porphyria?

3 answers
Is Porphyria contagious?

Is Porphyria contagious?

3 answers
Celebrities with Porphyria

Celebrities with Porphyria

Is Porphyria hereditary?

Is Porphyria hereditary?

3 answers

Stories of Porphyria

STORY
Porphyria stories
Hello I am from Pakistan. When I was born, I was completely all right.  After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoie...
Porphyria stories
Porphyria stories
Porphyria stories

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Porphyria forum

QUESTION

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Statistics of Porphyria

16 people with Porphyria have taken the SF36 survey. Mean of Porphyria is 1671 points (46 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Find your symptoms soulmates

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Porphyria