Stories of Porphyria

Porphyria stories
Hello I am from Pakistan. When I was born, I was completely all right.  After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoie...
Porphyria stories

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Porphyria forum


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Statistics of Porphyria

9 people with Porphyria have taken the SF36 survey. Mean of Porphyria is 1616 points (45 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

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