There are 170 people in the Porphyria map

Porphyria sports

Is it advisable to do exercise when affected by Porphyria? Which activ...

1 answer
Porphyria advice

Which advice would you give to someone who has just been diagnosed wit...

1 answer
Porphyria cure

Does Porphyria have a cure?

Porphyria diet

Is there a diet which improves the quality of life of people with Por...

1 answer

Stories of Porphyria

STORY
Porphyria stories
Hello I am from Pakistan. When I was born, I was completely all right.  After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoie...
Porphyria stories

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Porphyria forum

QUESTION

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Statistics of Porphyria

12 people with Porphyria have taken the SF36 survey. Mean of Porphyria is 1488 points (41 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

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