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There are 194 people in the Porphyria map
What is the life expectancy of someone with Porphyria?
Is Porphyria contagious?
ICD10 code of Porphyria and ICD9 code
Is Porphyria hereditary?
Stories of Porphyria
CONGENITAL ERYTHROPOIETIC PORPHYRIA
Hello I am from Pakistan. When I was born, I was completely all right. After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoie...
11/12/15, 10:49 PM by
Abdul Waheed Butt
1/16/16, 10:47 AM by
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Statistics of Porphyria
people with Porphyria have taken the SF36 survey. Mean of Porphyria is 1519 points (42 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best.
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Porphyria cutanea tarda
Acute intermittent porphyria
Congenital erythropoietic porphyria
X-linked dominant protoporphyria
Aminolevulinate dehydratase deficiency porphyria