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There are 170 people in the Porphyria map
Is it advisable to do exercise when affected by Porphyria? Which activ...
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Is there a diet which improves the quality of life of people with Por...
Stories of Porphyria
CONGENITAL ERYTHROPOIETIC PORPHYRIA
Hello I am from Pakistan. When I was born, I was completely all right. After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoie...
11/12/15, 10:49 PM by
Abdul Waheed Butt
1/16/16, 10:47 AM by
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Statistics of Porphyria
people with Porphyria have taken the SF36 survey. Mean of Porphyria is 1488 points (41 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best.
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Porphyria cutanea tarda
Acute intermittent porphyria
Congenital erythropoietic porphyria
X-linked dominant protoporphyria
Aminolevulinate dehydratase deficiency porphyria