There are 170 people in the Porphyria map

Porphyria sports

Is it advisable to do exercise when affected by Porphyria? Which activ...

1 answer
Porphyria advice

Which advice would you give to someone who has just been diagnosed wit...

1 answer
Porphyria cure

Does Porphyria have a cure?

Porphyria diet

Is there a diet which improves the quality of life of people with Por...

1 answer

Stories of Porphyria

Porphyria stories
Hello I am from Pakistan. When I was born, I was completely all right.  After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoie...
Porphyria stories

Tell your story and help others

Tell my story

View more

Porphyria forum


Ask a question and get answers from other users.

Ask a question

View more

Statistics of Porphyria

12 people with Porphyria have taken the SF36 survey. Mean of Porphyria is 1488 points (41 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map