Help us to help more people
  2. Porphyria
  3. Advice
Terapia psicológica
by Ezequiel
My family,friends and my spiritual community add strength to my resolve.
by Trusted(TED)
Hemina Humana
by Don Cu
>8 hours of sleep
by Per
Hot bath , especially at the beginning of the attack, when you feel cold and hot, pain in stomach and constipation, headache.
by Daria
Those I am close to help me when I need it most.
by Caroline M
STAY OUT OF THE SUN
by Samm
Stress release
by Tracey
understanding friends and family got me through the bad days
by lorri stewart
Having 3 monthly Lucrin injections
by Rhonda Ellis
Super hot baths
by becky
Glucose
by Krystyna Thomas
Changing my life's perspective to more positive spiritual view
by Esmeralda
Finding others in groups with the same condition, therefore no longer alone.
by Georgina Davies
Ranitidine
by Diana Greer
Lots of rest.
by Tracy Fannin
EMLA cream
by Sandra Jackson
Having a specialist who's an expert on Porphyria
by Tony McLaughlin
Less strict dieting
by Bonnie Paul
Sleep, sleep and sleep
by Annika
diet
by Dax
Daily pregabalin for nerve pain
by Chelle
play with children
by Abdul Waheed Butt
Medical books, journals and papers, as few medications as possible
by Barbara
Joining Facebook groups for EPP
by Lee webb
My faith in Jesus Christ
by Louise
Hot baths
by Molly Ingerson
My emotional support puppy, Dartanian.
by Emily
Wear gloves when outside
by Anne
family and friends
by Ingela
The use of histerlin to stop my monthly hormone fluctuation.
by Terri
Hormone implants.
by Anon
limit sun exposure to 15 min tops
by Bob bishop moms madien name wallace
My best friend that is always there for me
by Lica
Lots of carbs
by Jane F
health diet/carbs sugar no alcohol
by Nathalie
El doctor José Malagón
by eva maria
Mejore mi alimentación y consumo más hidratos de carbono
by Eliana Carolina
Taking glucose tablets when I feel a bit off
by Elliot
Remain patient
by JPolaske
EAT ALL THE CARBS ALL DAY EVERY DAY
by Dayle
Healthy diet
by Angelrose
Watch changes in medications
by Leigh Ann
My mom is my best advocate, I wouldn’t be where I am without her support.
by Rebekah G
My family
by Natasha Ahluwalia
Sugary carbs help sustain my attacks so far
by NuggetMidge84
Stay out of direct sunlight
by Ann Marie
You have it in you so live with it
by Baptiste
Staying active
by Kristy Patterson
I have the Variegate Porphyria R59W South African genetic mutation, which differs from other VP mutations in other parts of the world
by Carollynn