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Living with Post Polio Syndrome. How to live with Post Polio Syndrome?

Can you be happy living with Post Polio Syndrome? What do you have to do to be happy with Post Polio Syndrome? Living with Post Polio Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Post Polio Syndrome

Living with Post Polio Syndrome

Living with Post Polio Syndrome


Post Polio Syndrome (PPS) is a condition that affects individuals who have previously had polio. It is characterized by the onset of new symptoms or the worsening of existing polio-related symptoms years after the initial infection. While living with PPS can present challenges, there are strategies and lifestyle adjustments that can help individuals manage their condition and improve their quality of life.



1. Educate Yourself


One of the first steps in living with PPS is to educate yourself about the condition. Understanding the symptoms, causes, and available treatments can empower you to make informed decisions about your health. Consult reputable sources such as medical professionals, support groups, and reliable websites to gather accurate information.



2. Build a Support Network


Living with PPS can be physically and emotionally demanding. Building a strong support network is crucial. Reach out to family, friends, and support groups who can provide understanding, empathy, and practical assistance. Connecting with others who have PPS can also offer a sense of community and shared experiences.



3. Consult with Healthcare Professionals


Regular consultations with healthcare professionals who specialize in PPS are essential. They can help monitor your condition, provide guidance on managing symptoms, and suggest appropriate treatment options. Physical therapists, occupational therapists, and rehabilitation specialists can also play a vital role in developing personalized exercise and rehabilitation programs.



4. Manage Symptoms


Managing symptoms is a key aspect of living with PPS. Some strategies that may help include:



  • Conserving Energy: Pacing yourself and balancing activities with rest breaks can help manage fatigue and prevent overexertion.

  • Assistive Devices: Utilize assistive devices such as canes, braces, or wheelchairs to reduce strain on weakened muscles and improve mobility.

  • Pain Management: Consult with healthcare professionals to explore pain management techniques, including medications, physical therapy, and alternative therapies.

  • Temperature Control: Extreme temperatures can exacerbate PPS symptoms. Maintain a comfortable environment and dress appropriately for the weather.



5. Exercise and Physical Therapy


Engaging in regular exercise and physical therapy can help manage PPS symptoms and improve overall strength and mobility. However, it is crucial to work with healthcare professionals to develop a tailored exercise program that considers your specific needs and limitations. Overexertion or inappropriate exercises can worsen symptoms.



6. Maintain a Healthy Lifestyle


Adopting a healthy lifestyle can have a positive impact on managing PPS. This includes:



  • Healthy Diet: Eat a balanced diet rich in fruits, vegetables, lean proteins, and whole grains to support overall health and wellbeing.

  • Weight Management: Maintaining a healthy weight can reduce strain on weakened muscles and joints.

  • Quit Smoking: If you smoke, quitting can improve lung function and overall health.

  • Stress Management: Practice stress-reducing techniques such as meditation, deep breathing exercises, or engaging in hobbies to promote emotional well-being.



7. Adapt Your Environment


Modifying your environment can make daily tasks easier and safer. Consider the following:



  • Home Modifications: Install handrails, grab bars, and ramps to improve accessibility and prevent falls.

  • Assistive Devices: Use adaptive equipment such as reachers, dressing aids, or modified utensils to maintain independence in daily activities.

  • Accessible Transportation: Explore accessible transportation options to facilitate mobility outside the home.



8. Emotional Well-being


Living with PPS can be emotionally challenging. It is important to prioritize your emotional well-being:



  • Seek Emotional Support: Consider therapy or counseling to help cope with the emotional impact of PPS.

  • Join Support Groups: Participate in support groups or online communities to connect with others facing similar challenges.

  • Practice Self-Care: Engage in activities that bring you joy and relaxation, such as hobbies, reading, or spending time with loved ones.



Remember, each individual's experience with PPS is unique, and it may take time to find the strategies that work best for you. Be patient with yourself and celebrate small victories along the way. With proper management and support, it is possible to lead a fulfilling life while living with Post Polio Syndrome.


Diseasemaps
2 answers
Rest and excesrise if possible ask your doctor because each case may be different. Aiso a good diet.

Posted Jul 20, 2019 by Terry 3000

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