POTOCKI-LUPSKI SYNDROME FORUM

INFORMATION PROVIDED BY AMBASSADORS

Information about Potocki-Lupski syndrome provided by ambassadors of the condition.

Potocki-Lupski syndrome top 20 questions

POTOCKI-LUPSKI SYNDROME TOP 20 QUESTIONS

Discover the top 20 questions that someone asks himself/herself when is diagnosed with Potocki-Lupski syndrome.

GENERAL FORUM

General forum of Potocki-Lupski syndrome

RESEARCH / NEWS

The lastest on Potocki-Lupski syndrome research. Share your finds with others.

TREATMENTS

Drugs, supplements, therapies and treatments based on scientific studies.

NATURAL TREATMENTS

Treatments scientifically not proven.

SYMPTOMS

Potocki-Lupski syndrome symptoms. Share your symptoms with others.

POTOCKI-LUPSKI SYNDROME RESOURCES

Useful Potocki-Lupski syndrome resources. Blogs, websites, support groups, apps...

SICK LEAVE / DISABILITIES

Sick leaves and disabilities. Goverment support.

POTOCKI-LUPSKI SYNDROME COMMUNITY

SUPPORT

Get support from others. Ask for help and help others.

INTRODUCE YOURSELF

Introduce yourself. Tell us about you.

STORIES

Tell your story and help others