Stories of Prader-Willi Syndrome

STORY
Prader-Willi Syndrome stories
Rhianna was diagnosed with Prader-Willi at a few weeks old. It would be wonderful to meet another child with the same syndrome who could become a friend to Rhianna and who lives within travelling distance of Guernsey.
Prader-Willi Syndrome stories
I am speaking on behalf of my son Bill.  He is delightful and fun, but sufferes from the hunger and anxiety that food and unscheduled events can bring. He has a wonderful sense of humor (about everything except food).  He likes to part...
Prader-Willi Syndrome stories
Born Oct 13, 2014. Diagnosed around 3 weeks old through genetic blood tests. Deletion type. NG tube used for feedings, pulse oxygen monitor, and supplemental oxygen at night. Growth hormone. Glasses. Ankle braces/ supports. Now over 1 year old, can ...
Prader-Willi Syndrome stories
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Prader-Willi Syndrome stories
Başak, was born in Milas on 18.03.2010. Symptoms of PWS from birth. In the same year, diagnosed with PWS. Başak, lived experiences of each child with PWS. Even apart from these, PWS in the literature for non-kidney failure is experiencing. PWS is c...

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Prader-Willi Syndrome forum

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Statistics of Prader-Willi Syndrome

2 people with Prader-Willi Syndrome have taken the SF36 survey. Mean of Prader-Willi Syndrome is 2418 points (67 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Prader-Willi Syndrome

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