Stories of Primary ciliary dyskinesia

STORY
Primary ciliary dyskinesia stories
I have 6 year old twins non identical both born with situs in versus totals dextrocardia . One also has p.c.d. plus hearing loss and other problems all associated with it.
Primary ciliary dyskinesia stories
I am the mother of an 11 year old girl with katageners. Diagnosed at the age of 6, just by fluke, really. Although, Kalypso had a history of chest infections,  runny noses, coughs - our pediatrician was treating her for asthma and we were told s...

Tell your story and help others

Tell my story

View more

Primary ciliary dyskinesia forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Primary ciliary dyskinesia

2 people with Primary ciliary dyskinesia have taken the SF36 survey. Mean of Primary ciliary dyskinesia is 1973 points (55 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Primary ciliary dyskinesia

Join the map