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Does Primary Orthostatic Tremor have a cure?

Here you can see if Primary Orthostatic Tremor has a cure or not yet. If there is no cure yet, is Primary Orthostatic Tremor chronic? Will a cure soon be discovered?

Primary Orthostatic Tremor cure

Primary Orthostatic Tremor is a rare neurological disorder characterized by rapid muscle contractions in the legs when standing. Unfortunately, there is currently no known cure for this condition. However, there are treatment options available to manage symptoms and improve quality of life. These may include medications, physical therapy, and assistive devices. It is important for individuals with Primary Orthostatic Tremor to consult with a healthcare professional for personalized advice and guidance.



Primary Orthostatic Tremor (POT) is a rare neurological disorder characterized by a rapid tremor in the legs when standing. This condition affects approximately 1 in 500,000 individuals, primarily middle-aged or older adults. The exact cause of POT is still unknown, and there is currently no known cure for this condition.



The main symptom of POT is a trembling sensation in the legs that occurs immediately upon standing. This tremor is typically not visible to the naked eye but can be felt by the affected individual. The tremor frequency is usually between 13 and 18 Hz, making it much faster than other types of tremors. The sensation can be described as an internal vibration or buzzing feeling, which can be quite distressing for those experiencing it.



While there is no cure for POT, there are treatment options available to help manage the symptoms and improve the quality of life for individuals with this condition. Medications such as clonazepam, gabapentin, and primidone have been used to reduce the tremor and alleviate symptoms. However, the effectiveness of these medications can vary from person to person.



Physical therapy can also be beneficial for individuals with POT. Exercises that focus on improving balance, coordination, and muscle strength may help reduce the severity of the tremor and improve overall mobility. Additionally, using assistive devices such as canes or walkers can provide stability and support while standing or walking.



In some cases, deep brain stimulation (DBS) may be considered as a treatment option for individuals with severe and debilitating POT. DBS involves the implantation of electrodes in specific areas of the brain to help regulate abnormal electrical signals and reduce tremors. However, this procedure is invasive and carries potential risks, so it is typically reserved for those who have not responded well to other treatment options.



Living with POT can be challenging, as the constant tremor can significantly impact daily activities and quality of life. It is important for individuals with POT to seek support from healthcare professionals, as well as connect with support groups or organizations that specialize in movement disorders. These resources can provide valuable information, coping strategies, and emotional support.



In conclusion, while there is currently no cure for Primary Orthostatic Tremor, there are treatment options available to manage the symptoms and improve the quality of life for affected individuals. Medications, physical therapy, and in some cases, deep brain stimulation can help alleviate the tremor and reduce its impact on daily activities. Seeking support from healthcare professionals and connecting with support groups can also be beneficial for individuals living with POT.


Diseasemaps
2 answers
None known at this time. Sadly, because it's so rare, not much research has been done.

Posted Dec 1, 2021 by Marie Witham 1500

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Stories of Primary Orthostatic Tremor

PRIMARY ORTHOSTATIC TREMOR STORIES
Primary Orthostatic Tremor stories
I started feeling, what I called an 'internal tremor' when I was in my late 30's, usually when I was under a little stress.  I was showing my third dog in obedience and every time I went into the ring, I was suddenly overcome with this inner tremulo...
Primary Orthostatic Tremor stories
First light  sensations of tremors began between 1996 / 2000 and soon arrived problems of balance.  Doctor didn't know what was the problem ! He laughed at me and said I was stressed and tired ! I've been roaming so during long years,  about ...
Primary Orthostatic Tremor stories
My story begins when I had severe ear and sinus infections.  An ENT doctor put me on 6 weeks of antibotic.  When I recovered and started my housework and shopping I had great difficulty standing for more than a few minutes.  It became impossible t...
Primary Orthostatic Tremor stories
still that is but I can sit ... it's been a crazy ride the journey of ot it's gone from jiggling on my feet (early days) to literally falling out of the bath while attempting to shower to now accepting I need a walker to do shopping, festivals and ma...
Primary Orthostatic Tremor stories
 I was diagnosed last year after 15 years of not knowing what was going on. Having enjoyed some years of singing with our choral society, I thought I had turned into a nervous nellie when I couldn't stand up for a performance. I couldn't write if I ...

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Primary Orthostatic Tremor forum

PRIMARY ORTHOSTATIC TREMOR FORUM
Primary Orthostatic Tremor forum
for many years I've been suffering from Tremors such as finger tapping and leg shaking. About 2 years ago they escalated to Violent tremors. In the movement disorder lab they showed I did not have seizures and the doctor said he thought I was having...

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