How do I know if I have Primary Orthostatic Tremor?

Primary Orthostatic Tremor (POT) is a rare neurological condition characterized by a rapid tremor in the legs and trunk when standing still. It is often misdiagnosed or overlooked due to its rarity and the difficulty in detecting the tremor. If you suspect you may have POT, here are some signs and symptoms to look out for:

1. Tremor: The hallmark symptom of POT is a high-frequency tremor that occurs in the legs and trunk when standing. This tremor is typically not visible to the naked eye and can only be felt by the person experiencing it. It is often described as a feeling of vibration or internal shaking.

2. Sensation of unsteadiness: People with POT often report feeling unsteady or as if they are about to fall when standing still. This sensation is usually relieved when sitting down or walking.

3. Tremor relief: The tremor associated with POT is usually relieved when the affected person starts walking or sits down. This temporary relief is a distinguishing feature of POT and can help differentiate it from other movement disorders.

4. Fatigue: Many individuals with POT experience fatigue or muscle weakness, especially after prolonged standing or walking. This fatigue may be more pronounced in the legs and can impact daily activities.

5. Difficulty with balance: POT can affect balance and coordination, making it challenging to maintain stability when standing. This can lead to a fear of falling and avoidance of activities that require prolonged standing.

6. Misdiagnosis: Due to its rarity and the subtlety of the tremor, POT is often misdiagnosed or mistaken for other conditions such as essential tremor or anxiety. It is important to consult with a neurologist who specializes in movement disorders for an accurate diagnosis.

If you suspect you may have Primary Orthostatic Tremor, it is crucial to seek medical evaluation from a qualified healthcare professional. A neurologist will perform a thorough examination, including a detailed medical history, physical examination, and possibly additional tests such as electromyography (EMG) or nerve conduction studies to confirm the diagnosis.

Early diagnosis and appropriate management can help alleviate symptoms and improve quality of life for individuals with POT. Treatment options may include medications, physical therapy, and assistive devices to aid with balance and mobility.