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What is the prevalence of Primary Orthostatic Tremor?

How many people does Primary Orthostatic Tremor affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Primary Orthostatic Tremor

Primary Orthostatic Tremor is a rare neurological disorder characterized by rapid muscle contractions in the legs when standing. It causes an unsteadiness and trembling sensation that improves when sitting or walking. The exact prevalence of this condition is unknown, but it is estimated to affect around 1 in 500,000 individuals. Primary Orthostatic Tremor is more common in middle-aged and older adults, with women being slightly more affected than men. Due to its rarity and often misdiagnosis, the prevalence may be underestimated. Early recognition and proper diagnosis are crucial for managing this condition effectively.



Primary Orthostatic Tremor (POT) is a rare neurological disorder characterized by a rapid tremor in the legs when standing. Although it is considered a rare condition, the exact prevalence of POT is not well-established due to its underdiagnosis and misdiagnosis. However, studies suggest that it may be more common than previously thought.


Research conducted in different countries has reported varying prevalence rates. A study in Spain estimated a prevalence of 1 in 500,000 individuals, while another study in the United Kingdom found a prevalence of 1 in 32,000 individuals. These numbers indicate that POT is relatively rare, but not extremely so.


It is important to note that POT is often misdiagnosed as essential tremor or other movement disorders, leading to a lack of accurate prevalence data. Additionally, many individuals with POT may go undiagnosed due to the subtle nature of the tremor and the lack of awareness among healthcare professionals.


Further research and awareness are needed to better understand the true prevalence of Primary Orthostatic Tremor and improve diagnosis rates.


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World map of Primary Orthostatic Tremor

Find people with Primary Orthostatic Tremor through the map. Connect with them and share experiences. Join the Primary Orthostatic Tremor community.

Stories of Primary Orthostatic Tremor

PRIMARY ORTHOSTATIC TREMOR STORIES
Primary Orthostatic Tremor stories
I started feeling, what I called an 'internal tremor' when I was in my late 30's, usually when I was under a little stress.  I was showing my third dog in obedience and every time I went into the ring, I was suddenly overcome with this inner tremulo...
Primary Orthostatic Tremor stories
First light  sensations of tremors began between 1996 / 2000 and soon arrived problems of balance.  Doctor didn't know what was the problem ! He laughed at me and said I was stressed and tired ! I've been roaming so during long years,  about ...
Primary Orthostatic Tremor stories
My story begins when I had severe ear and sinus infections.  An ENT doctor put me on 6 weeks of antibotic.  When I recovered and started my housework and shopping I had great difficulty standing for more than a few minutes.  It became impossible t...
Primary Orthostatic Tremor stories
still that is but I can sit ... it's been a crazy ride the journey of ot it's gone from jiggling on my feet (early days) to literally falling out of the bath while attempting to shower to now accepting I need a walker to do shopping, festivals and ma...
Primary Orthostatic Tremor stories
 I was diagnosed last year after 15 years of not knowing what was going on. Having enjoyed some years of singing with our choral society, I thought I had turned into a nervous nellie when I couldn't stand up for a performance. I couldn't write if I ...

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Primary Orthostatic Tremor forum

PRIMARY ORTHOSTATIC TREMOR FORUM
Primary Orthostatic Tremor forum
for many years I've been suffering from Tremors such as finger tapping and leg shaking. About 2 years ago they escalated to Violent tremors. In the movement disorder lab they showed I did not have seizures and the doctor said he thought I was having...

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