This website is owned and maintained by DISEASEMAPS LTD (“we” or “us”). We are responsible for the collection and proper management of any personal information you submit.
Personal identification information
We may collect personal identification information from Users in a variety of ways, including, but not limited to, when Users visit our site, add to the map, fill out a form, respond to a survey, and in connection with other activities, services, features or resources we make available on our Site.Users may be asked for, as appropriate, name, email address. Users may, however, visit our Site anonymously. We will collect personal identification information from Users only if they voluntarily submit such information to us. Users can always refuse to supply personally identification information, except that it may prevent them from engaging in certain Site related activities.
Non-personal identification information
We may collect non-personal identification information about Users whenever they interact with our Site. Non-personal identification information may include the browser name, the type of computer and technical information about Users means of connection to our Site, such as the operating system and the Internet service providers utilized and other similar information.
Web browser cookies
How we use collected information
diseasemaps may collect and use Users personal information for the following purposes:
To run and operate our Site
We may need your information display content on the Site correctly.
To improve our Site
We may use feedback you provide to improve our products and services.
To send periodic emails
We may use the email address to send User information and updates pertaining to their order. It may also be used to respond to their inquiries, questions, and/or other requests.
How we protect your information
We adopt appropriate data collection, storage and processing practices and security measures to protect against unauthorized access, alteration, disclosure or destruction of your personal information, username, password, transaction information and data stored on our Site.
Sharing your personal information
We do not sell, trade, or rent Users personal identification information to others. We may share generic aggregated demographic information not linked to any personal identification information regarding visitors and users with our business partners, trusted affiliates and advertisers for the purposes outlined above.
Sharing your story, advice and questions and answers of the forums
All information provided by users as stories, advice and questions and answers of the forums could be shared by Diseasemaps Team for diffusion purposes.
Embed map, iframes
By joining diseasemaps you agree that the map or maps that have joined, can be viewed on other websites and blogs through iframes. However on other websites will not appear personal information that can identify youself and in no case third-party websites can access their personal data.
If User decides to opt-in to our mailing list, they will receive emails that may include company news, updates, related product or service information, etc.
By sending us (or uploading in this page) a video you signify your acceptance on that this video can be uploaded to YOUTUBE and be shared publicly in YOUTUBE DISEASEMAPS CHANNEL, DISEASEMPAS webpage and social networks
500 GWAS Purpose
The purpose of 500GWAS project of diseasemaps.org is to boost the genetic research of different diseases and conditions to help finding more personalized treatments, faster and more accurate diagnoses, and thus helping people who suffer them.
500 GWAS Method
To participate in this research, you have to fill out a survey with the conditions that you have been diagnosed, as well as the age when you were diagnosed. If you do not have a clear diagnosis or if you have not yet been diagnosed, you must check the box 'I have not yet been diagnosed with this condition.' Then you must upload a file from your RAW genetic analysis. It is a .txt file which you can get from the website where you took the genetic test.
Before 24 hours your genetic information will be deleted from our server and stored in a safe place, preventing possible attacks by third parties that may endanger your privacy.
500 GWAS Confidentiality Notice
Privacy of the users of diseasemaps.org is a priority for us.
We are very committed to the confidentiality of the participants. We will not share any personal information (with which you could be identified) with third parties without first obtaining your explicit consent.
To carry out the studies, researchers will have access to aggregated data, genetic data and surveys completed by users that will never be connected to personal data.
500 GWAS Contact
Raquel Belmonte, Biomedical Engineer, finishing a Master’s Degree at Carlos III University of Madrid, is the researcher responsible for the study. If you have any questions you can contact her at: firstname.lastname@example.org
Your acceptance of these terms
By using this Site, you signify your acceptance of this policy. If you do not agree to this policy, please do not use our Site. Your continued use of the Site following the posting of changes to this policy will be deemed your acceptance of those changes.
Company registration number: 09878535
20-22, Wenlock Road, London, N1 7GU, England
This document was last updated on June 15, 2015