This Privacy Policy governs the manner in which diseasemaps collects, uses, maintains and discloses information collected from users (each, a User) of the http://www.diseasemaps.org website (Site).

Diseasemaps.org respects and protects the privacy of people who use this website. Personal information about you is not disclosed to any third party without first receiving your permission, as explained in this Privacy Policy

This website is owned and maintained by DISEASEMAPS LTD (“we” or “us”). We are responsible for the collection and proper management of any personal information you submit.

Personal identification information

We may collect personal identification information from Users in a variety of ways, including, but not limited to, when Users visit our site, add to the map, fill out a form, respond to a survey, and in connection with other activities, services, features or resources we make available on our Site.Users may be asked for, as appropriate, name, email address. Users may, however, visit our Site anonymously. We will collect personal identification information from Users only if they voluntarily submit such information to us. Users can always refuse to supply personally identification information, except that it may prevent them from engaging in certain Site related activities.

Non-personal identification information

We may collect non-personal identification information about Users whenever they interact with our Site. Non-personal identification information may include the browser name, the type of computer and technical information about Users means of connection to our Site, such as the operating system and the Internet service providers utilized and other similar information.

Web browser cookies

Our Site may use cookies to enhance User experience. User's web browser places cookies on their hard drive for record-keeping purposes and sometimes to track information about them. User may choose to set their web browser to refuse cookies, or to alert you when cookies are being sent. If they do so, note that some parts of the Site may not function properly.

How we use collected information

diseasemaps may collect and use Users personal information for the following purposes:

  • To run and operate our Site
    We may need your information display content on the Site correctly.
  • To improve our Site
    We may use feedback you provide to improve our products and services.
  • To send periodic emails
    We may use the email address to send User information and updates pertaining to their order. It may also be used to respond to their inquiries, questions, and/or other requests.

How we protect your information

We adopt appropriate data collection, storage and processing practices and security measures to protect against unauthorized access, alteration, disclosure or destruction of your personal information, username, password, transaction information and data stored on our Site.

Sharing your personal information

We do not sell, trade, or rent Users personal identification information to others. We may share generic aggregated demographic information not linked to any personal identification information regarding visitors and users with our business partners, trusted affiliates and advertisers for the purposes outlined above.

Sharing your story, advice and questions and answers of the forums

All information provided by users as stories, advice and questions and answers of the forums could be shared by Diseasemaps Team for diffusion purposes.

Embed map, iframes

By joining diseasemaps you agree that the map or maps that have joined, can be viewed on other websites and blogs through iframes. However on other websites will not appear personal information that can identify youself and in no case third-party websites can access their personal data.

Electronic newsletters

If User decides to opt-in to our mailing list, they will receive emails that may include company news, updates, related product or service information, etc.

Videos

By sending us (or uploading in this page) a video you signify your acceptance on that this video can be uploaded to YOUTUBE and be shared publicly in YOUTUBE DISEASEMAPS CHANNEL, DISEASEMPAS webpage and social networks

500GWAS Project

Before adding your data to diseasemaps.org you must accept this privacy policy by checking the box 'I accept the consent and Privacy Policy.' If you do not agree with some points of our privacy policy, do not participate in our study. Participation is completely voluntary.

500 GWAS Purpose

The purpose of 500GWAS project of diseasemaps.org is to boost the genetic research of different diseases and conditions to help finding more personalized treatments, faster and more accurate diagnoses, and thus helping people who suffer them.

500 GWAS Method

To participate in this research, you have to fill out a survey with the conditions that you have been diagnosed, as well as the age when you were diagnosed. If you do not have a clear diagnosis or if you have not yet been diagnosed, you must check the box 'I have not yet been diagnosed with this condition.' Then you must upload a file from your RAW genetic analysis. It is a .txt file which you can get from the website where you took the genetic test.

Before continuing you must accept the privacy policy. Once you submit your genetic analysis, you must fill out a brief (2 minutes) survey about your lifestyle. The purpose of this survey is to filter, in subsequent studies, factors of your lifestyle that could influence on developing the condition, in order to get more accurate results.

Before 24 hours your genetic information will be deleted from our server and stored in a safe place, preventing possible attacks by third parties that may endanger your privacy.

500 GWAS Confidentiality Notice

Privacy of the users of diseasemaps.org is a priority for us.

We are very committed to the confidentiality of the participants. We will not share any personal information (with which you could be identified) with third parties without first obtaining your explicit consent.

To carry out the studies, researchers will have access to aggregated data, genetic data and surveys completed by users that will never be connected to personal data.

500 GWAS Contact

Raquel Belmonte, Biomedical Engineer, finishing a Master’s Degree at Carlos III University of Madrid, is the researcher responsible for the study. If you have any questions you can contact her at: [email protected]

Changes to this privacy policy

diseasemaps has the discretion to update this privacy policy at any time. When we do, we will post a notification on the main page of our Site. We encourage Users to frequently check this page for any changes to stay informed about how we are helping to protect the personal information we collect. You acknowledge and agree that it is your responsibility to review this privacy policy periodically and become aware of modifications.

Your acceptance of these terms

By using this Site, you signify your acceptance of this policy. If you do not agree to this policy, please do not use our Site. Your continued use of the Site following the posting of changes to this policy will be deemed your acceptance of those changes.

Contacting us

If you have any questions about this Privacy Policy, the practices of this site, or your dealings with this site, please contact us at [email protected]

DISEASEMAPS LTD

Company registration number: 09878535

20-22, Wenlock Road, London, N1 7GU, England

This document was last updated on June 15, 2015