- Mediastinite Fibrosante
- Interviews
Josiane's interview
How did all start?
Pressure on my neck was the first symptom.
Do you already have a diagnosis? How long did it take you to get it?
Yes,I do. 8 months.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Thoracic surgeon, infectologist.
What has been the most useful thing for you so far?
Nothing at this moment.
What have been your biggest difficulties?
something heavy on the shoulders. Blurry vision. swelling in the arms and face. neck pressure when by any effort.
How has your social and family environment reacted? Have your social or family relationships changed?
Yes a lot
What things have you stopped doing?
Walking, running, go to the gym.
What do you think about the future?
I am really scared.
So far, which years have been the best years in your life? What have you done during them?
Last year. 2018
What would you like to do if you didn’t have your condition?
Travel
If you had to describe your life in a sentence, what would it be?
Blessed.
Finally, what advice would you give to a person in a similar situation?
Search a lot about it, pray and be patient.