good support group
Improved support has helped, particularly on Facebook.
Relatively stable and litle progression
Losing weight and gaining my 'life' back going out with my family.
helping other patients
ganas de vivir
Friends on the Pulmonary web site giving me helpful advice
watching what I eat
pulmonary rehab.
Supportive family
Drinking plenty of water!
Knowing I'm not alone.
Inhaled NAC (N-acetyl- cysteine) 2x every day!!
Diet
Weight loss.
Improving diet haa allowed me to get fitter and lose weight.
Wonderful medical teams
Steam room and keeping busy
Keeping mobile and eating heakthy . everyday is not going to be easy but you have to press forward.
Learning how to become my own best advocate and finding my voice.
But I had my own dertermination to live. Friend of my wife gave me a book which I incourage you to read. Love, Medicine and Miricles by Dr B Seagull(sp)
Exercicios de reabilitação
Um bom acompanhamento médico
Viajar y entre otras consumir asido micofenolico dejar la azatioprina :)
I am on OFEV, hoping it works
Staying positive and active even on the bad days.
good doctors
Knowing that research has improved and awareness is greater.
A pain being on Oxygen 24/7!