Question - Recurrent Respiratory Papillomatosis

0

Disability

Asked 2 years ago tbrock 2911

I am having the hardest time finding any information about filing for disability with RRP. Has anyone filed for disability and willing share their experience or any information relating to this process.  

Thanks for reading and I hope to hear back from you! 

2 answers | Know someone who can answer? Share the question and help to solve it
1

It can be very hard, especially if your presentation isn't severe. The best thing to do is gather as much information to present as possible from your doctor. They will have you evaluated by their own doctor though, which can be tough because most doctors aren't familiar with the condition. They could argue that you can still work because "it just affects your voice" yes, I've heard this. You have to show that your appointments, surgeries, and treatments make it difficult to work. As an adult you will be denied. Then you have to go to a lawyer. Most work based on only getting a fee once you get approved and out of your lump sum (as long as you try again right after denial they count all the time since you first applied but not if you let it lapse. I can't guarantee you will get it in the end. I only know from what others have said about getting disability but for other conditions. And for my child's which wasn't denied because my kid has autism and they tend to approve kids on the first try. If you have Facebook I recommend looking up the RRP support group on there. There's a ton of great information, especially for self-advocacy.

 

best, 

Kristin 

Answered 2 years ago Kristin 321
0

Kristin has it nailed -- I could not get disablity since I am employed which proved to the SS department that I am perfectly fine.

 

Paul

Answered 2 years ago Paul 510
Recurrent Respiratory Papillomatosis prognosis

Recurrent Respiratory Papillomatosis prognosis

Recurrent Respiratory Papillomatosis advice

Which advice would you give to someone who has just been diagnosed with Rec...

Recurrent Respiratory Papillomatosis diagnosis

How is Recurrent Respiratory Papillomatosis diagnosed?

Recurrent Respiratory Papillomatosis treatments

What are the best treatments for Recurrent Respiratory Papillomatosis?

What is Recurrent Respiratory Papillomatosis

What is Recurrent Respiratory Papillomatosis

Living with Recurrent Respiratory Papillomatosis

Living with Recurrent Respiratory Papillomatosis. How to live with Recurren...

Couple and Recurrent Respiratory Papillomatosis

Is it easy to find a partner and/or maintain relationship when you have Rec...

ICD9 and ICD10 codes of Recurrent Respiratory Papillomatosis

ICD10 code of Recurrent Respiratory Papillomatosis and ICD9 code