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How do I know if I have Recurrent Respiratory Papillomatosis?

What signs or symptoms may make you suspect you may have Recurrent Respiratory Papillomatosis. People who have experience in Recurrent Respiratory Papillomatosis offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Recurrent Respiratory Papillomatosis?

Recurrent Respiratory Papillomatosis (RRP) is a rare condition characterized by the growth of benign tumors in the respiratory tract, particularly in the larynx (voice box) and other areas such as the trachea and bronchi. These tumors are caused by the human papillomavirus (HPV) types 6 and 11, which are typically transmitted through close contact.



Symptoms:



The symptoms of RRP can vary depending on the location and size of the tumors. The most common symptoms include:




  • Hoarseness or changes in voice: Due to the growth of tumors on the vocal cords, individuals with RRP may experience hoarseness or a change in their voice.

  • Difficulty breathing: Tumors in the airway can cause breathing difficulties, including shortness of breath, wheezing, or stridor (a high-pitched sound during inhalation).

  • Coughing: Chronic coughing, sometimes accompanied by blood in the sputum, can occur as a result of the tumors irritating the respiratory tract.

  • Recurrent respiratory infections: RRP can make individuals more susceptible to respiratory infections, such as bronchitis or pneumonia, due to the obstruction of the airway and compromised immune response.



Diagnosis:



If you suspect you may have RRP, it is important to consult with a healthcare professional. The diagnosis of RRP typically involves:




  • Medical history and physical examination: Your doctor will ask about your symptoms, medical history, and potential exposure to HPV. They will also examine your throat and airway using specialized instruments.

  • Laryngoscopy: This procedure involves the use of a flexible or rigid scope to visualize the larynx and identify any abnormal growths. It can be performed in an office setting or under general anesthesia.

  • Biopsy: A small tissue sample may be taken during laryngoscopy to confirm the presence of papillomas and rule out other conditions.

  • HPV testing: Testing for HPV types 6 and 11 may be conducted to confirm the viral cause of the papillomas.



Treatment:



RRP is a chronic condition that requires ongoing management. Treatment options for RRP include:




  • Surgical removal: The primary treatment for RRP is the surgical removal of the papillomas. This can be done using various techniques, including laser surgery, microdebrider, or cold instruments. Multiple surgeries may be required over time.

  • Adjuvant therapies: In some cases, adjuvant therapies such as antiviral medications or immunomodulatory drugs may be used to complement surgical treatment and reduce the recurrence of papillomas.

  • Voice therapy: If the vocal cords are affected, speech therapy may be recommended to improve voice quality and reduce strain on the vocal cords.



Conclusion:



If you are experiencing persistent hoarseness, difficulty breathing, chronic coughing, or recurrent respiratory infections, it is important to consult with a healthcare professional. While RRP is a rare condition, early diagnosis and appropriate treatment can help manage the symptoms and improve quality of life.


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Stories of Recurrent Respiratory Papillomatosis

RECURRENT RESPIRATORY PAPILLOMATOSIS STORIES
Recurrent Respiratory Papillomatosis stories
Hi,   I strongly suggest you find a doctor who can administer this drug to the virus. My vocal cords were very bad and I could bearly speak for over 6 months. After my first injection I have 90% of my voice back after 5 days. I avoided laser treat...
Recurrent Respiratory Papillomatosis stories
My son is 9 years old and was first diagnosed when he was 4 years old. He has had 29 surgeries to date. As he has been getting older, the number of surgeries he has each year is going  down.
Recurrent Respiratory Papillomatosis stories
My daughter was very quit when she was born.  We took her to a local ENT in Evansville, IN where we live.  The Dr said nothing was wrong with her, after many and many of scopes.  There was definitely something going on, as we couldn't even hear he...
Recurrent Respiratory Papillomatosis stories
My son was born quiet. He didn't make much noice when he cried, and the DR's took him away for a bit to check him out. He came back awhile later and we were told it was normal for babies to have fluid in their lungs and have to clear it out. We notic...
Recurrent Respiratory Papillomatosis stories
I was first diagnosed at the age of 9. I started off with normal surgery & went on to have laser but because of a build up of scar tissue, I now have micro-debridement. I have had 82+ surgeries (I gave up counting at one stage). They Started off on a...

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Recurrent Respiratory Papillomatosis forum

RECURRENT RESPIRATORY PAPILLOMATOSIS FORUM
Recurrent Respiratory Papillomatosis forum
Hi there... I've seen research that indicates RRP and depression are connected. I was diagnosed with RRP as an adult after years of testing for other related possibiliites. During that time, I experienced mental health issues (anxiety and depres...
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I am having the hardest time finding any information about filing for disability with RRP. Has anyone filed for disability and willing share their experience or any information relating to this process.  Thanks for reading and I hope to hear back fr...

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