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What is the life expectancy of someone with Recurrent Respiratory Papillomatosis?

Life expectancy of people with Recurrent Respiratory Papillomatosis and recent progresses and researches in Recurrent Respiratory Papillomatosis

Recurrent Respiratory Papillomatosis life expectancy

Recurrent Respiratory Papillomatosis (RRP) is a rare condition characterized by the growth of benign tumors in the respiratory tract. The life expectancy of individuals with RRP can vary depending on various factors such as the severity of the disease, age at onset, and treatment options. While RRP is a chronic condition, it is typically not life-threatening. However, in some cases, the tumors can cause significant respiratory complications, leading to potential risks. Early diagnosis, regular monitoring, and appropriate medical interventions can help manage the symptoms and improve the quality of life for individuals with RRP. It is crucial for patients to work closely with healthcare professionals to determine the most suitable treatment plan.



Recurrent Respiratory Papillomatosis (RRP) is a rare and chronic viral disease that affects the respiratory tract. It is caused by the human papillomavirus (HPV), specifically types 6 and 11. RRP primarily affects the larynx, but it can also involve other parts of the respiratory system such as the trachea, bronchi, and lungs. This condition is characterized by the growth of benign tumors or papillomas on the lining of the airways.



The impact of RRP on life expectancy can vary significantly depending on several factors, including the severity of the disease, the age at onset, the extent of involvement, and the response to treatment. While RRP is a chronic condition, it is generally not considered life-threatening. However, it can have a significant impact on the quality of life and may require long-term management.



RRP is typically diagnosed in childhood, with the peak incidence occurring between the ages of 2 and 5. The disease can also affect adults, although it is less common. The symptoms of RRP can range from mild to severe and may include hoarseness, difficulty breathing, coughing, and recurrent respiratory infections. The growth of papillomas in the airways can lead to airway obstruction, which can be life-threatening in rare cases.



Treatment options for RRP aim to remove or reduce the papillomas and manage the symptoms. The primary treatment modality is surgical removal of the papillomas using techniques such as microdebrider, laser surgery, or cold instruments. However, due to the recurrent nature of the disease, multiple surgeries may be required throughout a patient's lifetime.



While RRP is a chronic condition, it is important to note that it does not typically affect life expectancy in the same way as other life-threatening diseases. With appropriate management and regular follow-up, individuals with RRP can lead fulfilling lives. However, the impact on quality of life can be significant, especially in cases where the disease is more severe or resistant to treatment.



Regular monitoring and follow-up care are crucial for individuals with RRP to manage the disease effectively. This may involve regular visits to an otolaryngologist or a specialist in voice disorders. The frequency of follow-up visits may vary depending on the individual's specific situation and the severity of the disease.



It is important for individuals with RRP to maintain a healthy lifestyle and take steps to minimize the risk of complications. This includes avoiding smoking and exposure to secondhand smoke, as well as practicing good respiratory hygiene to reduce the risk of respiratory infections.



In conclusion, while Recurrent Respiratory Papillomatosis is a chronic condition that can significantly impact the quality of life, it is generally not considered a life-threatening disease. With appropriate management and regular follow-up care, individuals with RRP can lead fulfilling lives. However, the severity of the disease and the response to treatment can vary, so it is important for each individual to work closely with their healthcare team to develop a personalized treatment plan.


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Stories of Recurrent Respiratory Papillomatosis

RECURRENT RESPIRATORY PAPILLOMATOSIS STORIES
Recurrent Respiratory Papillomatosis stories
Hi,   I strongly suggest you find a doctor who can administer this drug to the virus. My vocal cords were very bad and I could bearly speak for over 6 months. After my first injection I have 90% of my voice back after 5 days. I avoided laser treat...
Recurrent Respiratory Papillomatosis stories
My son is 9 years old and was first diagnosed when he was 4 years old. He has had 29 surgeries to date. As he has been getting older, the number of surgeries he has each year is going  down.
Recurrent Respiratory Papillomatosis stories
My daughter was very quit when she was born.  We took her to a local ENT in Evansville, IN where we live.  The Dr said nothing was wrong with her, after many and many of scopes.  There was definitely something going on, as we couldn't even hear he...
Recurrent Respiratory Papillomatosis stories
My son was born quiet. He didn't make much noice when he cried, and the DR's took him away for a bit to check him out. He came back awhile later and we were told it was normal for babies to have fluid in their lungs and have to clear it out. We notic...
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I was first diagnosed at the age of 9. I started off with normal surgery & went on to have laser but because of a build up of scar tissue, I now have micro-debridement. I have had 82+ surgeries (I gave up counting at one stage). They Started off on a...

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Recurrent Respiratory Papillomatosis forum

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Recurrent Respiratory Papillomatosis forum
Hi there... I've seen research that indicates RRP and depression are connected. I was diagnosed with RRP as an adult after years of testing for other related possibiliites. During that time, I experienced mental health issues (anxiety and depres...
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I am having the hardest time finding any information about filing for disability with RRP. Has anyone filed for disability and willing share their experience or any information relating to this process.  Thanks for reading and I hope to hear back fr...

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