Help us to help more people
  2. Relapsing Polychondritis
  3. Advice
Excellent reumatoloog
by Ilse
Listening to my body
by Jackie
Several treatments but always with side effects. Most of them severe side ee.
by Laoura
A travel pillow with a hole in the center helps ears tremendously when I sleep!
by Mbaker5
My son has felt better since getting OFF Prednisone.
by Cajunboy
Plenty of Sleep
by Leslie
Steroids
by Debbie
Making sure I rest.
by Tammi
Getting a diagnosis and begin treatment
by Lisa Matthews (Lissy)
So far all medication has not worked
by monicabe
Cyclophosphamide brought my RP under control
by Sijeffs
Get a positive support system (let go of those who cannot add to your life)
by Erin
Predisone: Pro:helps with the inflammation of eyes, ear, joints (most of the time); Con: Weight gain, higher sugar levels, Afib, mood swings.
by Patricia
prednisone
by Marinncrone
Finding doctors who are willing to fight for you.
by John
Low Dose Naltrexone Is a fabulous alternative medication.
by Lisa HypoGal
Regular steroids
by Jane
Hot Epsom salt baths
by Darlene
Yoga and exercise keep me healthy and my symptoms down
by Sarah
Currently on methotrexate down to 30 units
by Jessi
1 year of steroids and methotrexate has controlled most of my symptoms
by Gwen
Controlling inflammation
by Annette Calvin
It took me 17 years to get diagnosed and I have ear, nose, tracheal and heart involvement.
by Louise C
Prednisone
by Jen
Rest
by Iza_bau
Prednisone
by CC
Experienced Autoimmune Sufferer
by Susan
Prednisone helped flares
by Kaz
prednisone
by april ginty
daily exercise
by Jen
On weekly methotrexate injections and it's better but still having flares
by Kimberley
To have been diagnosed at last in september 2017 after years of wondering whats wrong with me
by Agneta
To have been diagnosed at last in september 2017 after years of wondering whats wrong with me
by Agneta
Pose stent
by Marina
Finally i found a doctor who is precisely diagnosed my symptoms
by Nina
Prednisone & Methotrexate
by Rare in Melbourne
Seven months of methotrexato and two months of adalimumab
by Cristina
Diary free
by Lesley
Eating healthy
by Cindy
Lots of rest
by Sonja Riskey
Prednisone
by Retired@1
Managing stress
by Carol Giordano
Hydrocodone
by Tmrcarlson
CBD oil
by Sandy
Accepting I need rest and self care helps me deal with RP.
by Amanda
Changed my diet
by Leta
I was so happy to find a Rheumatologist who recognized my rare condition!
by Susie Ratledge
I just had my third Humira injection and I am noticing a difference. Hoping for the best!
by Julia
Cytoxin infusions for 3 months
by beckerbrooklyn1
Eat better
by Juan