- Relapsing Polychondritis
- Interviews
Paul's interview
How did all start?
Extremely sore ear swollen and purple
Do you already have a diagnosis? How long did it take you to get it?
3 long years and 5 gps
For what medical specialties have you been treated? What has been the most useful specialty for your?
Prednisolone
What has been the most useful thing for you so far?
Strict diet
What have been your biggest difficulties?
Picking out the foods and food additives that cause the flares
How has your social and family environment reacted? Have your social or family relationships changed?
Family and friends understand
What things have you stopped doing?
Nothing
What do you think about the future?
My future is what it is
So far, which years have been the best years in your life? What have you done during them?
I have led a full life it has its ups and downs but life is worth living I have worked in my own business for 50 years. I have worked all over my state and overseas played sport till I was fifty I fish and crab camp on the beaches and used to cruise haha I have raised 6 children and given my 4 sons a trade
What would you like to do if you didn’t have your condition?
I can still do everything just not as well as I once could
If you had to describe your life in a sentence, what would it be?
Full with lots of ups and downs
Finally, what advice would you give to a person in a similar situation?
Don’t give up try everything it has taken me nearly 14 years to get to my stage and iam still learning about this disease and teaching doctors If you can’t get useful help from a doctor go to the next one or do research on doctors and help lines Read as much information on RP as possible and keep reading as it is updated
