A Relapsing Polychondritis interview , Relapsing Polychondritis.

april ginty's interview


How did all start?

earaches, rib pain as a child

Do you already have a diagnosis? How long did it take you to get it?

30 years

For what medical specialties have you been treated? What has been the most useful specialty for your?

ENT, PA pa suggested autoimmune possibility-then was confirmed by ent-rhuematologist

What has been the most useful thing for you so far?

taking prednisone

What have been your biggest difficulties?

tiredness, pain, weight gain

How has your social and family environment reacted? Have your social or family relationships changed?

no

What things have you stopped doing?

working, teaching

What do you think about the future?

don't know

So far, which years have been the best years in your life? What have you done during them?

the 30s with my children

What would you like to do if you didn’t have your condition?

teach

If you had to describe your life in a sentence, what would it be?

a little limited but grateful

Finally, what advice would you give to a person in a similar situation?

enjoy your good days


Oct 20, 2017

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