A Relapsing Polychondritis interview , Rheumatoid Arthritis.

Sonja Riskey's interview


How did all start?

Started with nose flares then ear flares and now added ribs.

Do you already have a diagnosis? How long did it take you to get it?

Yes took me 7 years

For what medical specialties have you been treated? What has been the most useful specialty for your?

ENT Rheumatologist

What has been the most useful thing for you so far?

Actemra infusions

What have been your biggest difficulties?

The pain

How has your social and family environment reacted? Have your social or family relationships changed?

I am no longer able to work

What things have you stopped doing?

Working and doing volunteer work

What do you think about the future?

I don’t

So far, which years have been the best years in your life? What have you done during them?

Don’t know

What would you like to do if you didn’t have your condition?

Work

If you had to describe your life in a sentence, what would it be?

Live one day at a time.

Finally, what advice would you give to a person in a similar situation?

Be your own advocate

Interview Relapsing Polychondritis

Jun 11, 2019

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