- Relapsing Polychondritis
- Interviews
Kaz's interview
How did all start?
Started 2016 with scleritis followed by nose flare in form swelling and excruciating pain
Do you already have a diagnosis? How long did it take you to get it?
Working diagnosis September 2016- September 2018. Formally diagnosed with severe relapsing polychondritis in September 2018. Now on biological meds - Humira
For what medical specialties have you been treated? What has been the most useful specialty for your?
Rheumatologists
Neurologists
Dermatologists
ENTs
Immunologist
Respiratory specialists
Cardiologist
Orthopaedic specialist
Psychologist
Diagnosis from immunologist
What has been the most useful thing for you so far?
Prednisone has helped most to date
Just started humira and weaning off prednisone.
What have been your biggest difficulties?
Dismissive doctors and doctors who don’t listen
How has your social and family environment reacted? Have your social or family relationships changed?
I no longer socialise and only leave home for medical appointments or hospital admissions.
What things have you stopped doing?
Unable to work at present
What do you think about the future?
I take one day at a time
