19

Is it easy to find a partner and/or maintain relationship when you have Relapsing Polychondritis?

People with experience in Relapsing Polychondritis give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Relapsing Polychondritis. What are the possible difficulties in having a relationship?

Couple and Relapsing Polychondritis
11 answers
Yes, I'd say next to impossible however I am still married after over 30 years.

Posted Aug 14, 2017 by Susan 2000
Look for someone who is compassionate. He or she must be able to put you first above everything else. He/she will have to carry the load during the flares. The problem with RP is that we look healthy. It is something you wouldn't see unless you live with a person. Your partner must have a sincere interest in reading and learning about the disease. Otherwise, they may think you are a hypochondriac.

Posted Sep 1, 2017 by Diane 2050
hmmm!!! for me, no! I have had a relationship breakdown due to my health issues. For others though, they have partners that have stood by them.

Posted Mar 20, 2018 by Lisa Matthews (Lissy) 4800
No it's like having cancer your partner needs t have alot of patience and help you alot

Posted Jun 12, 2019 by Tmrcarlson 3550
Relationships can be hard or tested without adding in an autoimmune disease. It’s important to communicate with your partner so that they can support you. Depression and pain can affect how we treat the ones we love and it’s also hard for our partners to watch us suffer in pain and be unable to help. Communication is vital.

Posted Jun 12, 2019 by Kaz 3000
This is a difficult question. It's the same as meeting anyone, however, it takes a patient, understanding and loving person to partner with someone who has serious health issues

Posted Dec 30, 2019 by Leanne 2500
No, it is hard as the illness brings huge challenges, disability, pain and it makes it more difficult and outs huge strain in relationships.

Posted Dec 30, 2019 by Carrie 3050
I had no trouble but I had to eventually replace nose cartilage with irradiated bone.

Posted Mar 20, 2022 by shlawver 2500
Translated from spanish Improve translation
Yes, I have not had a problem with this

Posted Oct 2, 2017 by Ana Luiza Bottura 2000
Translated from spanish Improve translation
If it is difficult, my partner of 6 years of relationship he left me when I started the disease... but not everything is bad after a time, I met whom today is my wife... the world is big and the best people are in difficult times with you...

Posted Oct 2, 2017 by Kevin Ochoa 2000
Translated from spanish Improve translation
Do two years of marriage this month, and my husband has helped me a lot and understood my moments of weakness, because we are human!
So I'm living one day after another with great faith and a strong will to beat this disease.

Posted Oct 2, 2017 by Glaucia 1800

Couple and Relapsing Polychondritis

Relapsing Polychondritis life expectancy

What is the life expectancy of someone with Relapsing Polychondritis?

18 answers
Celebrities with Relapsing Polychondritis

Celebrities with Relapsing Polychondritis

7 answers
Is Relapsing Polychondritis hereditary?

Is Relapsing Polychondritis hereditary?

15 answers
Is Relapsing Polychondritis contagious?

Is Relapsing Polychondritis contagious?

12 answers
Natural treatment of Relapsing Polychondritis

Is there any natural treatment for Relapsing Polychondritis?

12 answers
ICD9 and ICD10 codes of Relapsing Polychondritis

ICD10 code of Relapsing Polychondritis and ICD9 code

13 answers
Living with Relapsing Polychondritis

Living with Relapsing Polychondritis. How to live with Relapsing Polychondr...

17 answers
Relapsing Polychondritis diet

Relapsing Polychondritis diet. Is there a diet which improves the quality o...

18 answers

World map of Relapsing Polychondritis

Find people with Relapsing Polychondritis through the map. Connect with them and share experiences. Join the Relapsing Polychondritis community.

Stories of Relapsing Polychondritis

RELAPSING POLYCHONDRITIS STORIES
Relapsing Polychondritis stories
The first time I noticed symptoms, I thought I was having an allergic reaction to something at work. My ears became so red and inflamed and hurt so bad. I let it go on for almost 3 days before finally going to a hospital where I was diagnosed with re...
Relapsing Polychondritis stories
It began with dry nose, nose bleeding and what my GP thought was a sinus infection. Antibiotics and prednisone perscribed, helped for a while, then reoccurred. Ear then swelled over twice the size - red, shiny and moist, GP again said outer ear infec...
Relapsing Polychondritis stories
i had progressively worsening breathing issues for many years before my diagnosis of rp.  I went through many specialists and tests and no one could identify why I was having breathing issues.  I had no outward signs of rp until one day my ears swe...
Relapsing Polychondritis stories
I have had strange symptoms before this came to light, but during my last trimester of my pregnancy with my youngest son, I had a severe respiratory infection that never seemed to get better. I have had exercise induced asthma since I was young and t...
Relapsing Polychondritis stories
I was officially diagnosed with RP 2 yrs ago. No one else in my family has it. It started approximately 5 years ago with ear flares, jumping from one to the other. My PCP happened to go to a conference where RP was discussed, and soon contacted me to...

Tell your story and help others

Tell my story

Relapsing Polychondritis forum

RELAPSING POLYCHONDRITIS FORUM
Relapsing Polychondritis forum
I don't think RP is as rare as we are led to believe. It seems many symptoms are unrelated. You go to an ortho doc for knee/joint pain. You go to an ENT for ears and throat. You go to an ophthalmologist for eyes. You go to a dermatologist for skin. T...

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map