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What are the latest advances in Relapsing Polychondritis?

Here you can see the latest advances and discoveries made regarding Relapsing Polychondritis.

Latest progress of Relapsing Polychondritis
10 answers
Much new & updated research is being done. Especially at the NIH.

Posted Aug 14, 2017 by Susan 2000
I don't know about this personally. I know that some RP patients are taking Biologics like Humira, but I think their disease is more advanced than mine. I am doing pretty well on Imuran and low doses of Prednisone.

Posted Sep 1, 2017 by Diane 2050
There has been very little research into the study of Relapsing Polychondritis. In the UK, the main specialist is Professor D D'Cruz, Guys hospital, London.

Posted Mar 20, 2018 by Lisa Matthews (Lissy) 4800
Unknown by me studies are being done

Posted Jun 12, 2019 by Tmrcarlson 3550
NIH is investigating and researching relapsing polychondritis to help bring awareness and treatment into the future. They are making great advancement in understanding and diagnosing relapsing polychondritis. With advancement and awareness comes early treatment and less damage to the cartlidge of the body.

Posted Jun 12, 2019 by Kaz 3000
The latest advancements in relapsing polychondritis are the biological drugs. There's no clinical trials due to it being so rare, and patients have to jump through hoops to be given the biological drugs. First line therapy is methotrexate and immune suppressor drugs.

Posted Dec 30, 2019 by Leanne 2500
Research is far and few between as there are so few of us, but they are trying.

Posted Dec 30, 2019 by Carrie 3050
Some new medications are on the market. I plan to try them, but medical expertise is low in my area.

Posted Mar 20, 2022 by shlawver 2500
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I know, no

Posted Oct 2, 2017 by Ana Luiza Bottura 2000
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Until the moment the solution actenra is the best result you have

Posted Oct 2, 2017 by Kevin Ochoa 2000

Latest progress of Relapsing Polychondritis

Relapsing Polychondritis life expectancy

What is the life expectancy of someone with Relapsing Polychondritis?

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Celebrities with Relapsing Polychondritis

Celebrities with Relapsing Polychondritis

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Is Relapsing Polychondritis hereditary?

Is Relapsing Polychondritis hereditary?

15 answers
Is Relapsing Polychondritis contagious?

Is Relapsing Polychondritis contagious?

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Natural treatment of Relapsing Polychondritis

Is there any natural treatment for Relapsing Polychondritis?

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ICD9 and ICD10 codes of Relapsing Polychondritis

ICD10 code of Relapsing Polychondritis and ICD9 code

13 answers
Living with Relapsing Polychondritis

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World map of Relapsing Polychondritis

Find people with Relapsing Polychondritis through the map. Connect with them and share experiences. Join the Relapsing Polychondritis community.

Stories of Relapsing Polychondritis

RELAPSING POLYCHONDRITIS STORIES
Relapsing Polychondritis stories
The first time I noticed symptoms, I thought I was having an allergic reaction to something at work. My ears became so red and inflamed and hurt so bad. I let it go on for almost 3 days before finally going to a hospital where I was diagnosed with re...
Relapsing Polychondritis stories
It began with dry nose, nose bleeding and what my GP thought was a sinus infection. Antibiotics and prednisone perscribed, helped for a while, then reoccurred. Ear then swelled over twice the size - red, shiny and moist, GP again said outer ear infec...
Relapsing Polychondritis stories
i had progressively worsening breathing issues for many years before my diagnosis of rp.  I went through many specialists and tests and no one could identify why I was having breathing issues.  I had no outward signs of rp until one day my ears swe...
Relapsing Polychondritis stories
I have had strange symptoms before this came to light, but during my last trimester of my pregnancy with my youngest son, I had a severe respiratory infection that never seemed to get better. I have had exercise induced asthma since I was young and t...
Relapsing Polychondritis stories
I was officially diagnosed with RP 2 yrs ago. No one else in my family has it. It started approximately 5 years ago with ear flares, jumping from one to the other. My PCP happened to go to a conference where RP was discussed, and soon contacted me to...

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Relapsing Polychondritis forum

RELAPSING POLYCHONDRITIS FORUM
Relapsing Polychondritis forum
I don't think RP is as rare as we are led to believe. It seems many symptoms are unrelated. You go to an ortho doc for knee/joint pain. You go to an ENT for ears and throat. You go to an ophthalmologist for eyes. You go to a dermatologist for skin. T...

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