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Which are the symptoms of Relapsing Polychondritis?

See the worst symptoms of affected by Relapsing Polychondritis here

Relapsing Polychondritis symptoms

Symptoms of Relapsing Polychondritis


Relapsing Polychondritis (RP) is a rare autoimmune disease that primarily affects the cartilage in the body. It is characterized by recurrent episodes of inflammation in various cartilaginous structures, including the ears, nose, joints, and respiratory tract. The symptoms of RP can vary widely from person to person, and the severity of the disease can also fluctuate over time.



1. Ear Inflammation: One of the most common symptoms of RP is inflammation of the ears. This can cause pain, redness, and swelling of the outer ear, known as auricular chondritis. The ears may become tender to touch and may even develop a cauliflower-like appearance. Hearing loss or ringing in the ears (tinnitus) can also occur.



2. Nasal Inflammation: RP can also affect the nose, leading to nasal chondritis. This can cause a variety of symptoms, including nasal pain, congestion, and a runny nose. The nasal cartilage may become inflamed, leading to a collapsed or pinched appearance of the nose, known as saddle nose deformity.



3. Joint Inflammation: Joint involvement is another common feature of RP. The inflammation can affect various joints, such as the knees, wrists, and ankles. Joint pain, swelling, and stiffness are typical symptoms. In some cases, joint inflammation can mimic symptoms of rheumatoid arthritis.



4. Respiratory Tract Inflammation: RP can cause inflammation in the respiratory tract, leading to symptoms such as cough, shortness of breath, and chest pain. In severe cases, it can result in difficulty breathing and respiratory distress.



5. Eye Involvement: Inflammation of the eyes, known as scleritis or episcleritis, can occur in individuals with RP. This can cause redness, pain, and sensitivity to light. In some cases, it may lead to blurred vision or even vision loss if left untreated.



6. Skin Manifestations: RP can sometimes present with skin symptoms, including rashes, ulcers, or nodules. These skin manifestations are typically seen in areas of cartilage involvement, such as the ears or nose.



7. Other Symptoms: RP can also affect other organs and systems in the body, leading to a wide range of additional symptoms. These may include fever, fatigue, weight loss, muscle aches, and general malaise.



It is important to note that the symptoms of RP can come and go, with periods of remission followed by flare-ups. The disease can progress slowly over time, and if left untreated, it can lead to permanent damage to the affected cartilage and organs.



If you experience any of these symptoms or suspect you may have RP, it is crucial to consult a healthcare professional for an accurate diagnosis and appropriate management. Early detection and treatment can help alleviate symptoms, prevent complications, and improve the overall quality of life for individuals with RP.


Diseasemaps
20 answers
The pain and tiredness. The affect it has on the cartilage in my body and my organs.

Posted Apr 26, 2017 by Freya 1000
Patients may present with any or all of the following common signs of Relapsing Polychondritis:

swelling and pain of the nose,
painful inflammation and redness of the ears
joint pain, swelling and stiffness.
if airways are involved, breathlessness, stridor, throat pain and hoarseness in voice.
fever, fatigue and weight loss
eye scleritis, redness and inflammation

Posted Apr 27, 2017 by Lisa Matthews (Lissy) 4800
Worst part to be affected is trachea and having to get on vent.

Posted Apr 27, 2017 by Laoura 2050
Pain, tiredness, tracheal issues. Medication reactions

Posted Aug 9, 2017 by Louise C 1450
For me personally, I'd have to answer with being the chronic, debillatating & never ending fatigue.

Posted Aug 14, 2017 by Susan 2000
The worst symptoms I have with Relapsing Polychondritis would be the all over body pain during a flare. It is similar to arthritis pain, but also similar to the feeling you have when coming down with the flu.

Also the flares with my ears are difficult because when they flare, I am unable to sleep on them. They are so painful and hard that I have difficulty finding pillows to sleep on. I am not a back sleeper at all. So my sleep in interrupted throughout the night. For many years, I was diagnosed with ear infections as the canals of my ears would swell shut and be painful. I was working then, so the hearing loss was unbearable. I could hardly hear people on the phone. I was diagnosed with ear infections and given antibiotics and a weeks worth of prednisone. Occasionally, I was given a cortisone shot. I spent 10 to 15 years like this before finally being diagnosed by an Internal Med. doctor in the little town of Gladewater, Tx. The ENT'S, Rheumy's, and other doctors I saw, all missed it!!

Posted Sep 1, 2017 by Diane 2050
Swelling of ears, nose, difficulty breathing

Posted Jun 11, 2019 by [email protected] 1000
Ear and nose collapsing.

Posted Jun 12, 2019 by Tmrcarlson 3550
Chronic pain, ear, nose, eye, costochondritis, joint pain, trachea involvement, low grade fevers.

Posted Jun 12, 2019 by Kaz 3000
Hot red ears, swelling of bridge of nose, ocular inflammation, vasculitis, joint pain, chondritis, teeth fragility

Posted Dec 30, 2019 by Leanne 2500
Inflamed cartilage, red painful ears, red painful nose, inflammation of airways, joint pain, fatigue, headaches, cauliflower ear, saddle nose, eye inflammation

Posted Dec 30, 2019 by Carrie 3050
Ears and nose The lumps and swelling are extremely painful

Posted Dec 14, 2020 by Paul 600
I lost all cartilage in nose. trachea, and ears. Respiratory track affected. Eye swells with extreme pain and redness

Posted Mar 20, 2022 by shlawver 2500
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Pain in the joints, and the trachea

Posted Oct 1, 2017 by Ana Luiza Bottura 2000
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Inflammation in the ears nose with a lot of pain in addition to redness of eyes

Posted Oct 2, 2017 by Kevin Ochoa 2000
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Outbreaks that cause inflammation and pain in areas of the body where there is cartilage that last several days and can take even with a fever; joint pain usual; tiredness.

Posted Oct 2, 2017 by cmomo 600
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Pain in the joints, eyes red and swollen and ears red and swollen

Posted Oct 2, 2017 by Marci 100
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Inflammation of the pavilions of the ears, Inflammation of the cartilage of the nose, red eyes, swelling of some joints, pain in the joints, fatigue, muscle loss.

Posted Oct 2, 2017 by Glaucia 1800
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Pain in the joints and muscles, ears swollen and lumps in head, neck, ribs, etc
If I could remove a symptom would be the biltos in the neck and head which makes me dizzy a lot

Posted Oct 2, 2017 by Sandra 950

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World map of Relapsing Polychondritis

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Stories of Relapsing Polychondritis

RELAPSING POLYCHONDRITIS STORIES
Relapsing Polychondritis stories
The first time I noticed symptoms, I thought I was having an allergic reaction to something at work. My ears became so red and inflamed and hurt so bad. I let it go on for almost 3 days before finally going to a hospital where I was diagnosed with re...
Relapsing Polychondritis stories
It began with dry nose, nose bleeding and what my GP thought was a sinus infection. Antibiotics and prednisone perscribed, helped for a while, then reoccurred. Ear then swelled over twice the size - red, shiny and moist, GP again said outer ear infec...
Relapsing Polychondritis stories
i had progressively worsening breathing issues for many years before my diagnosis of rp.  I went through many specialists and tests and no one could identify why I was having breathing issues.  I had no outward signs of rp until one day my ears swe...
Relapsing Polychondritis stories
I have had strange symptoms before this came to light, but during my last trimester of my pregnancy with my youngest son, I had a severe respiratory infection that never seemed to get better. I have had exercise induced asthma since I was young and t...
Relapsing Polychondritis stories
I was officially diagnosed with RP 2 yrs ago. No one else in my family has it. It started approximately 5 years ago with ear flares, jumping from one to the other. My PCP happened to go to a conference where RP was discussed, and soon contacted me to...

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Relapsing Polychondritis forum

RELAPSING POLYCHONDRITIS FORUM
Relapsing Polychondritis forum
I don't think RP is as rare as we are led to believe. It seems many symptoms are unrelated. You go to an ortho doc for knee/joint pain. You go to an ENT for ears and throat. You go to an ophthalmologist for eyes. You go to a dermatologist for skin. T...

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