People with experience in Retinitis pigmentosa give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Retinitis pigmentosa. What are the possible difficulties in having a relationship?

▷ Is it easy to find a partner and/or maintain relationship when you have Retinitis pigmentosa?

Stories of Retinitis pigmentosa

RETINITIS PIGMENTOSA STORIES

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It's pretty simple. Started when I was 22 or so. My mom has RP and my sister has vision trouble as well. I knew I had RP rather soon after but spent years fighting the changes I needed to make to my lifestyle. Hell, I still do. RP folks tend to be...

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3/3/16, 6:12 AM by Ian

MY RP

I was diagnosed with autosomal dominant Retinitis Pigmentosa when I was 14. I inherited it from my dad. I was declared legally blind (less than 20 degrees of vision) when I was 20. I am currently 28, and I have 5 degrees left. I also have cystoid mac...

611

3/3/16, 2:04 PM by Sara

TED'S STORY

I'm not going to write personal information here. But I do encourage you to contact me if you have RP or Coats Disease. I have never met or known anybody else who has Coats, so that would be particularly interesting. We might be able to share informa...

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3/3/16, 7:57 PM by Ted

A GLASS OF WATER

AUTOSOMAL RECESSIVE RP - GENE PDE6B PATHOGENIC MUTATION HETEROZYGOUS (C.892C>T (P.GIN298*)) I was diagnosed with RP in 2012, aged 32, after my boyfriend at the time insisted I go and get my eyes checked. He once brought me a glass of water during ...

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3/3/16, 3:00 PM by RP Amsterdam

WILCO'S STORY

Father of a beautiful girl, 7 years of age with RP

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3/29/16, 3:31 AM by Wilco

Tell your story and help others

Tell my story

Retinitis pigmentosa forum

RETINITIS PIGMENTOSA FORUM

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RP AND LIFE

how can you live with this disese?

469

by Yelda

PROFESSIONAL ACTIVITIES?

Another question... Do you still have a job? Or is it too difficult to work with your RP? I do have a job, but it is not so easy and it is very exhausting for my eyes...

461

by Sarah

SEEING THE WORLD!

I love to travel! I have a vision of only 3°, but I really want to see the world! The noises, the smell, the kind people, to be on the road, I love it! Where have you guys been to and what are your favorite destinations?

Is it easy to find a partner and/or maintain relationship when you have Retinitis pigmentosa?