Stories of Rett Syndrome

Rett Syndrome stories 
Rett Syndrome stories
Irene was born perfect: she ate and slept well, was happy, laughed, spoke, walked. At about 18-20 months she started to spit out, repeat words, throw things away, scream. Doctors, neurologist, genetics, psyquiatrists, psycologists... I don't remember...
Rett Syndrome stories
Taylor was diagnosed with Rett Syndrome at 2 1/2 yrs old.  She is atypical,  and still walking.  We have had many ups and down throughout the years, but I wouldn't trade it for anything. We have learned a lot about life, love and patie...
Rett Syndrome stories
Ema was born in December 2008 in Winnipeg Manitoba Canada. She is the youngest of 5 children. She has a micro-deletion on the 22.33 gene and has been diagnosed with having atypical Rett Syndrome with a unique MECP2 gene deletion. What we didn’t...
Rett Syndrome stories
" Je m’appelle Romane, j’ai bientôt 9 ans. J’ai un grand frère, Léo, de 14 ans et une petite sœur, Anna, de 4 ans. Quand je suis née (le 17 novembre 2006), maman s’est rapidement inquiét...

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Statistics of Rett Syndrome

3 people with Rett Syndrome have taken the SF36 survey. Mean of Rett Syndrome is 1500 points (42 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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