23

Celebrities with Rett Syndrome

What famous people have Rett Syndrome? Find out which celebrities, athletes or public figures have Rett Syndrome.

Celebrities with Rett Syndrome


Rett Syndrome is a rare genetic disorder that primarily affects females. It is characterized by severe cognitive and physical impairments, including loss of purposeful hand skills, repetitive hand movements, and a regression in language and social skills. While Rett Syndrome is a challenging condition, it is important to highlight the strength and resilience of individuals who live with it. Although there are no known celebrities with Rett Syndrome, there are several notable individuals who have raised awareness and made significant contributions to the Rett community.



1. Monica Coenraads: Monica Coenraads is the co-founder and Executive Director of the Rett Syndrome Research Trust (RSRT). While not a celebrity in the traditional sense, Coenraads has played a crucial role in advancing research and treatment options for Rett Syndrome. Through her tireless efforts, she has helped raise millions of dollars for research and has been instrumental in fostering collaborations between scientists, clinicians, and pharmaceutical companies.



2. Tim Freeman: Tim Freeman is the father of a daughter with Rett Syndrome and the co-founder of the Rett Syndrome Association of Australia (RSAA). Freeman's dedication to advocating for individuals with Rett Syndrome has been remarkable. He has worked tirelessly to raise awareness, provide support to families, and promote research initiatives. Freeman's efforts have been instrumental in improving the lives of those affected by Rett Syndrome in Australia.



3. Rettsyndrome.org Ambassadors: Rettsyndrome.org, a leading organization dedicated to accelerating research and empowering families affected by Rett Syndrome, has a group of ambassadors who actively promote awareness and fundraising efforts. While not celebrities in the traditional sense, these ambassadors play a crucial role in spreading awareness about Rett Syndrome and inspiring others to get involved. Their dedication and commitment to the cause are commendable.



4. Rett University: Rett University is an online educational platform that provides resources, training, and support for individuals with Rett Syndrome and their families. While not associated with a specific celebrity, Rett University has made a significant impact on the Rett community by offering valuable educational materials and empowering individuals with Rett Syndrome to reach their full potential.



While there may not be any celebrities with Rett Syndrome, it is important to recognize the individuals and organizations that have dedicated their time, energy, and resources to raising awareness, supporting families, and advancing research. Their contributions have made a profound difference in the lives of those affected by Rett Syndrome, and their efforts continue to inspire others to join the fight against this rare genetic disorder.


Diseasemaps
1 answer

Celebrities with Rett Syndrome

Rett Syndrome life expectancy

What is the life expectancy of someone with Rett Syndrome?

4 answers
Is Rett Syndrome hereditary?

Is Rett Syndrome hereditary?

4 answers
Is Rett Syndrome contagious?

Is Rett Syndrome contagious?

4 answers
Natural treatment of Rett Syndrome

Is there any natural treatment for Rett Syndrome?

2 answers
ICD9 and ICD10 codes of Rett Syndrome

ICD10 code of Rett Syndrome and ICD9 code

4 answers
Living with Rett Syndrome

Living with Rett Syndrome. How to live with Rett Syndrome?

2 answers
Rett Syndrome diet

Rett Syndrome diet. Is there a diet which improves the quality of life of p...

2 answers
History of Rett Syndrome

What is the history of Rett Syndrome?

2 answers

World map of Rett Syndrome

Find people with Rett Syndrome through the map. Connect with them and share experiences. Join the Rett Syndrome community.

Stories of Rett Syndrome

RETT SYNDROME STORIES
Rett Syndrome stories
Taylor was diagnosed with Rett Syndrome at 2 1/2 yrs old.  She is atypical,  and still walking.  We have had many ups and down throughout the years, but I wouldn't trade it for anything. We have learned a lot about life, love and patience and met...
Rett Syndrome stories
" Je m’appelle Romane, j’ai bientôt 9 ans. J’ai un grand frère, Léo, de 14 ans et une petite sœur, Anna, de 4 ans. Quand je suis née (le 17 novembre 2006), maman s’est rapidement inquiétée de petits soubresauts que j’avais régulièr...
Rett Syndrome stories
Www.gp2c.org/skylarb 
Rett Syndrome stories
Irene was born perfect: she ate and slept well, was happy, laughed, spoke, walked. At about 18-20 months she started to spit out, repeat words, throw things away, scream. Doctors, neurologist, genetics, psyquiatrists, psycologists... I don't remember...
Rett Syndrome stories
Ema was born in December 2008 in Winnipeg Manitoba Canada. She is the youngest of 5 children. She has a micro-deletion on the 22.33 gene and has been diagnosed with having atypical Rett Syndrome with a unique MECP2 gene deletion. What we didn’t kno...

Tell your story and help others

Tell my story

Rett Syndrome forum

RETT SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map