What signs or symptoms may make you suspect you may have Rett Syndrome. People who have experience in Rett Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

▷ How do I know if I have Rett Syndrome?

Stories of Rett Syndrome

RETT SYNDROME STORIES

VIEWS

BY

MY DAUGHTER IS 19 YRS OLD AND DIAGNOSED WITH RETT SYNDROME

Taylor was diagnosed with Rett Syndrome at 2 1/2 yrs old. She is atypical, and still walking. We have had many ups and down throughout the years, but I wouldn't trade it for anything. We have learned a lot about life, love and patience and met...

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by Marcy Laird

ROMANE'S STORY

" Je m’appelle Romane, j’ai bientôt 9 ans. J’ai un grand frère, Léo, de 14 ans et une petite sœur, Anna, de 4 ans. Quand je suis née (le 17 novembre 2006), maman s’est rapidement inquiétée de petits soubresauts que j’avais régulièr...

635

by Romane

SKYLAR'S STORY

Www.gp2c.org/skylarb

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11/14/15, 7:45 AM by Skylar

IRENE

Irene was born perfect: she ate and slept well, was happy, laughed, spoke, walked. At about 18-20 months she started to spit out, repeat words, throw things away, scream. Doctors, neurologist, genetics, psyquiatrists, psycologists... I don't remember...

594

2/12/16, 6:21 PM by Blanca

EMA (TRISH IS MY MOM)'S STORY

Ema was born in December 2008 in Winnipeg Manitoba Canada. She is the youngest of 5 children. She has a micro-deletion on the 22.33 gene and has been diagnosed with having atypical Rett Syndrome with a unique MECP2 gene deletion. What we didn’t kno...

How do I know if I have Rett Syndrome?