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Relapsing polychondritis

I suspected to have Relapsing polychondritis.
For several months, my ears swell and hurt, now it has become difficult to breathe and the chest hurts, a lump in the throat...

My eyes are red, dry and burning (Schirmer's test 5 mm).

I am doing tests, waiting for treatment and feeling horrible lack of support, because there's so few people know about this desease and it's symptoms, so I can hear "You're cheating"...

I'm very tired and filling lonely

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